My husband has gone back into hospital almost a year after being diagnosed with metastatic prostate cancer. The disease has progressed further into his bones and spine. He has an infection that Doctors are battling to identify and help my husband recover from. He is on what is called an Internal medical ward where they try to treat patients who are not able to cope with surgery.
I am finding each day harder and harder to get through. I am visiting him everyday and spending all the time I can with him. He sleeps for most of the time, he is very weak, unable to feed himself or to drink.
I am so afraid of life without him. He has been such a dominant presence in my life for more than half my life. What do others do to occupy themselves during the evenings and times between visiting hours?
everything about our journey through from diagnosis to now has been so quick. I have fought so hard to get him everything he needs from good care from a brilliant care provider, a power wheelchair, to a comfortable bed. What I haven’t been able to control is the community care from GP’s, district nurses and others who have ignored my pleas for palliative care. The upshot is hospital admission when my husband wants to be at home receiving care and with me and our beloved golden retriever. I am beyond devastated at not having him home and so sad I can’t sleep or eat. I just wait for the time when I can go to see him again, I am very worried about our dog who is stressed by not having her Dad at home. Sorry to go on but I just somewhere to chat, living alone with no one to talk to is so rubbish right now.
Hi teatowel
Im sorry to read things are deteriorating for you both.
My husband spent a good few weeks in ICU, some of it on a ventilator, and it was exhausting. Not helped by his hospiral being 2.5 hours travelling away as I dont drive it was bus train bus bus to get there unless I got taxis which cost a fortune. Thankfully the hospital had nice spaces where you could sit and read and I often took my laptop and did some work. He could only have visitors in short bursts. When i got home, it was dozing and rubbish tv as I didnt have energy for anything else.
Like you my husband was a huge part of my life for two thirds of my lufe, we didnt quite make 40 years together, he died in October.
Life alone is rubbish, I find things to fill my days. At the moment its trying uo fall back in love with my garden.
Did you ever get in touch with your local hospice? He should not really be discharged until some care plan is in place. Do you have hospital at home where you live?
Here is a good place to chat or let off steam, its so tough being on your own.
Thank you and I am so sorry you had to go through all that pain and grief. I am in contact with the local hospice but it is a long bank holiday and everyone is on leave…very much a frustration, but they have lives to be getting on with. My greatest sadness is not being able to hold my husband as he drifts off to sleep in the middle of the night. He wakes early and is scared. Hospital visiting time are 1pm -7pm so I can’t go to him until then. We have been together for more than half of my life. My life only started when I met him. Before that it was a life of struggle and abusive family. I adore my husband and has such a huge personality and presence that I have no idea how to live without him.
When my husband was in hospital for his final 3 weeks I must have read at least 3 books, numerous magazines & played games on my phone. Like you mentioned hubby was asleep a lot & I didnt want to disturb him. I just wanted to be at his side & to help him in any way I could. I took him to the toilet as it was a waste of time pressing his buzzer.He hated asking me to help him. I was lucky that my sister works in the restaurant in there so I would go over & meet up with her when she was on her breaks. Other members of the family would meet me @ the hospital & we would go for a brew in the Costa or the restaurant so I was never far away from him if I was needed. I spent a lot of my time chasing nurses for his painkiller top ups which were supposed to be hourly but quite often he was kept waiting for upto 2 hrs or more. It was heartbreaking to see him in so much pain when there was no need for him to be.
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