Hi all,
My husband has been diagnosed with terminal kidney cancer that has spread to lungs
its a new diagnosis since 20 Jan 2026. And was a huge shock
He has started immune therapy pills and intravenous every fortnight for 12 weeks then once a month.. I know it’s very hard for him and he has my sympathy.. He has had cancer 3 times before starting when he was 24 then again at 26 and finally at 28 then cancer free uptill now age 69
im really struggling with everything right now and really don’t know what to do.. since diagnosis things have gone downhill and he doesn’t seem to want to venture out anywhere which I’m finding hard.
he’s always been by my side for 47 years and not having that is very hard for me. I feel I’m a prisoner in my own home now and just getting up eating and going back to bed
i I don’t want to sound selfish but I think he should get out for fresh air and a bit of a break from sitting in a chair in the same room however he’s breathing is now awful but not sure it’s just down to the lungs
thanks for listening
Yes, the Macmillan Staff member just lifted the complete discussion directly from the New to Community area into a new thread in the Carers Group.
Hi Dolly.
I can resonate with a husband not wanting to venture out, and I found this hard too. My husband, Tony, took to his bed very suddenly, we had just filled the car with petrol and he just couldnt hardly walk. Within a week we had the hospital bed in the living room, he was shuffling with a frame. My neighbour offered to take him out in a wheelchair but he just didnt want to. I even borrowed a ramp to get him to the patio which was right next to his bed, but no, he refused. I slept on the settee so our lives were lived in our living room, for 7 weeks until he died.
It was exhausting, but no, it isnt selfish at all to want more for him and you both.
Have you got GP or hospice support, have they given any prognosis if you wanted one?
Here is a good place to talk, it helps you feel less alone.
Hugs x
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