This is so sudden, and all new to me

  • 4 replies
  • 35 subscribers
  • 132 views

Last Saturday we found out my mother has terminally ill cancer, the Consultant said she has weeks, or maybe months.  Well that is what I am sure she said but was all a bit of a shock. 

She is at home on medication and we saw her yesterday and she was in good spirits but chatting to my father this evening she had a good day but is in pain this evening.  My first reaction is that this could be it !!!

I was very tempted to say I would go there, 1 & 1/2 to 1 & 3/4 hours away but I didn't for two reasons:

  • I only got 3 hours sleep last night because my brain cannot switch off and I am unsafe to drive that far at 10pm in the evening
  • If I jumped at every pain or change then I would not be told of her condition as in my parent's eye it would stop me worrying, the fact is I'd worry more.

I am packing a small back that I can grab if I need to get there quickly.

  • Hi Stuart, sorry to read that you are going through this with your mother. Its hard when the people you love are suffereing and you feel helpless. 

    What support does your mother have, is she under a hospice or still with a cancer team? It can take a while to get pain meds right but we had something at home known as JICs which is just in case. For my husband this this was pain meds and sickness meds. They were kept here and we called the hospice or district nurse if he needed them. Does you mum have anything like that?

    Just another thought too. My husband would be really chipper when we had company and once they went, he would be exhausted. I felt bad sometimes because I had to limit how long people stayed for because I knnew the effect it had on him. I remember saying many times, I really understand now why hospitals often have strict visiting times.  Being farther away is hard too. 

    When my husbands consultant said he had weeks to months, he got just over 2 months but once he was more or less bed bound, he had about 6 weeks. But noone really knew until he was literally dying.

    Hope your mum is feeling a bit brighter today.

    Keep talking, it helps.

  • She doesn't seem to be having that much support.

  • She is under the Community / District Nurse who saw her a couple of days after discharge and will be back next month, and she has a bag of meds.  There is a hospice that we have made contact with but we are not at that stage yet.

  • Keep asking the hospice for a bed as we fought for 3 weeks, once my hubby was in hospital, for a hospice bed. We kept getting told there wasn't any available. We finally got a bed on the Monday & he died early hours of Wednesday morning.