Hi
Im new here, im just looking for a bit of advice as im still in shock.
My mum (68 years old) had a seizure roughly 6 weeks ago, she had a scan and they found a very large brain tumor, a week later they operated to remove it but couldn’t remove 100% of it so they did a biopsy, 10 days later we got the results it was grade 4 glioblastoma and was very aggressive and incurable.
She was referred to an oncologist to discuss Chemotherapy or Radiotherapy to manage it and try to stop it spreading, we were awaiting an appointment but a few days ago she started to deteriorate and had to go back in hospital and put in a medically induced coma as she had another seizure and was in ICU
She is now more stable and the hospital are waiting for her physical health to improve and if she can have the treatment
I have moved back home so i can look after her if she can come out and have the treatment but my family are extremely unsupportive and keep putting me down telling me i cant do it, is there any other support i can get? Or has anyone experienced anything similar? Will it be difficult to manage and what should i expect?
Hi Elle1c4a29
Welcome to our community, I hope you find it both informative and supportive.
Before your mother comes home from hospital a care plan should be in place and the hospital should be able to help you sort that. She would be eligable for a needs assessment and you a carers assessment so she what support your both need - see here.
With my wife's dad she and her brother looked after him at home for some time but eventually his needs got to be more than they could provide and he moved in to a care home. With my mum and dad for some time they managed with carers but then moved into a unit with on site care staff and then later my dad into a care home.
It can be really difficult but also very rewarding.
<<hugs>>
Steve
