Looking for experiences of carer to parent at end of life

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Hello,

I am wanting to connect with others who are caring for thier parent at end of life. 

I am in my 20s and my Mum has oesophageal cancer with metastasis, 4 weeks ago the doctors gave a prognosis of a few weeks. Many experiences shared online that I have found, are from older individuals or those caring for thier spouse. I wondered if others in a similar position to me  might want to share experiences.

I am her main carer, although other family are around. I have found it quite difficult to go from being her daughter to her carer. I find this particularly difficult when she is agitated and anxious. I feel I'm inadequate to provide her with emotional support. 

It is also hard mentally now I can't go to work and have some normality.

If you are/ have been in a similar situation let me know.

Many thanks for reading 

  • Hi  

    I'm Dylan and I work in the Online Community team here at Macmillan. 

    I'm really sorry to hear about your mum and that doctors have only give her a prognosis of a few weeks. 

    I wanted to give your post a short reply to bump it up the list, so that it might be seen by more members in this forum. If you'd like, you could also post in the Supporting someone with incurable cancer forum  as there might be someone there with a similar experience to you. 

    I hope you can get the support that you need during the difficult time. 

    Take care, and please give our Support line a call if you ever need to chat to someone about what you are going through and how you are feeling. 

    Best wishes,
    Dylan

    Macmillan's Online Community Team

  • Hi I’m really sorry you are having such a difficult time. It is me that’s got the incurable cancer and my daughter in her early 20’s who’s looking after me. I would be happy to ask my daughter to connect with you if you’d like it’s such a tough situation to be in. Is your mum having any palliative treatments and is she still able to get out and about?

  • Hi I’m really sorry you are having such a difficult time. It is me that’s got the incurable cancer and my daughter in her early 20’s who’s looking after me. I would be happy to ask my daughter to connect with you if you’d like it’s such a tough situation to be in. Is your mum having any palliative treatments and is she still able to get out and about?

  • Sorry realised I’ve sent to wrong person