End of life

Oh Penny, I could have written this. In fact I was about to start my own thread when I saw yours. My husband has agressive sarcoma which has spread everywhere and  his treatment also stopped as it wasn't working. He has gone dramatically down hill in the past two weeks, unable to get out of bed, sick and in pain, barely eating and being upset all the time. Also had the conversation about the hospital bed, and a permanent catheter.

I don't have answers. Our district nurses are great. I would not be able to shower him, he couldn't get into the bath anyway, so its flannel and a bowl by the bed. Its just me too, as I don't have family nearby. 

Is it the end coming? I don't know but fear so. The decline has been dramatic and fast. Its terrifying but I sobbed on the district nurse today. It was the cornflakes. I took a small bowl of cornflakes up to him and he accidently dropped it all over the floor. I sat on the floor and sobbed and sobbed. Then we held each other and sobbed together.  Then I scrambled under the bed to get the cornflakes up and sobbed some more. I probably cleaned the carpet with my tears!

This journey is pants, but we are not alone. Keep writing here, there are so many of us having similar experiences, lets stay connected.

Oh and do nag and pester your district team, they want to support you, tell them how you feel. One big virtual hug coing your way xx

Thank you for responding back, knowing someone else is struggling too makes me feel normal. Funny I picked up a bottle of morphine yesterday and the top wasn’t secure it ended up up all down me on the carpet. Cleaning the carpet with my tears too ‍♀️ it’s such sticky stuff. Sending a big virtual hug  

Hi my name is Laura and I am now going through the same journey but in a different way and with a different family member. If you would like to chat. I would talk anytime could help us both

Take care Laura