Rare and aggressive

N99 6 hours ago

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Not me! But my wife has been diagnosed with a rare and aggressive cancer called Carcinosarcoma. It’s her third episode with cancer. She had a mastectomy 7 years ago, and 2 years ago she had her first encounter with Carcinosarcoma on her uterus. She had a full hysterectomy and chemo and it went away for a while but it’s back with a vengeance now. It’s inoperable so it’s just a case of chemo to try and give us a few months and hope to get on a trial of a new treatment, which is not a cure just a postponement.

its all a bit overwhelming really. We’ve known for a week that it’s a death sentence and telling all the family is truly upsetting. We really don’t know how long we have together, we don’t know what her quality of life will be, it’s scary. Family from all over the world will start visitIng soon. Chemo starts next week. I’m normally a pretty stoic kind of guy but I could use a friend right now.

Cherry2 6 hours ago

Hi N99, so sorry for what you're going through. I don't have any good advice but didn't want to read and run. Somehow, you will find a way through. My daughter finished two years of treatment for a rare and aggressive cancer in February. I was beyond devastated when she was diagnosed. But her end of treatment scans showed 'no cause for concern' . We know we're not out of the woods yet but were just beginning to wind down. I know I had put concerns about my husband's health on the back burner while daughter was having chemo, radiotherapy and three surgeries. Husband was diagnosed with vascular dementia in May.

I'm still reeling and trying to come to terms with this. Can't think too much about the future - if you worry too much about that, it stops you enjoying today. That's my only advice - I know we all have to plan for the future, but really do try to 'live in the moment'. On days when your wife has no appointments and feels well enough, do something nice together, even if it's only going to sit in the park and have an ice cream or watch a film together.

Sending love and strength. xx

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Rare and aggressive