Worrying about what the future looks like

  • 2 replies
  • 38 subscribers
  • 117 views

My partner (50 year old) was diagnosed with bowel cancer with liver mets a few months ago. We have a young family and I’m really trying to navigate my way through this journey and support him. I am really struggling with what our journey could look like as the consultant described the liver mets as advanced and that surgery may not be an option after all. I just don’t know what that means. On his last cycle of chemo they had explained that the tumours hadn’t shrunk on his CT but this was a good thing. This week they are telling us that he is not responding to treatment. I’m trying to get my head around it all. I am cried out and worry about our future. I feel like my partner has shut down this last week. I know he is worried about whether he will be around long enough to see kids grow up and this breaks me every time I think of it. 

  • I’m so sorry you’re going through this. My mum was recently diagnosed with advanced endometrial cancer so I can relate to the confusion, fear of the future and wanting to support as much as you can but feeling so overwhelmed with anticipatory grief, although I understand our situations are different.  

    Supporting someone with cancer while navigating the shock, fear and grief of it all feels impossible. It’s even harder when you see the emotional toll it’s taking on the person you love. I’m personally trying to approach it one day at a time and focusing on what I can do each day so it feels less daunting and trying to be kind to myself when I’m unable to do that, and the emotions flow out. It is exhausting & a constant mental battle but it feels like that’s the only thing I can do to get through each day as the future isn’t something I can control but I can find smaller goals to focus my attention on each day. 

    If it helps and you haven’t done it already, you can call the Macmillan support line as I’ve found them helpful in answering questions. They can’t answer for your husband’s case as they don’t have access to his medical information but they can help demystify the process as they have clinical nurses on their support line. For things specific to your husband, you could also try calling your clinical nurse specialist if you have one. 

  • Thank you so much for this message. It really means a lot. I’m so sorry to hear about your mum as well. I will definitely take your advice and allow for the emotional days and be kinder to myself. I have been in contact with macmillan and I’m going to meet up and see what support there is for us as a family. The nurse specialist has been truly amazing. Thank you so much