Brief history ..10 years ago he had hep c and had a hard year of treatment with Ribovarin and Interferon. It was hard and he was quite ill but we were strong together. Since then we have gone every 6mths with scans and checkups
May 2024 a yearly endoscopy showed varices in oesophagus.
A biopsy followed 2 July he diagnosed liver cancer . Although 70 they thought he should be assessed for transplant final day of assesment we met surgeon who looked at scan ..we knew there was a problem the cirrohsis was worse and the tumour wasn't just contained in liver it had gone into portal vein.
We were referred to oncology and they had hoped to do immunotherapy but toxins were too high... he had HE which causes confusion
October we were home here when he started vomiting coffee ground/blood and emergency hospital 7 days.
We went through all this together and were good.
However hospital can do no more and he is on Pallative care at home .
The HE is being controlled and he is on various drugs to ease discomfort but he is a different person..gone is the thirty plus years of togetherness and sharing of all life brings.
I will care for him every moment l have .l have watched the weight loss till the smallest jeans hang and his swollen tummy
I so want to hug him but he wants to push me away. There is little conversation . He lives in his books and TV he cannot cope with conversations l feel so alone and just want to break through the wall growing between us.
I am sorry writing this just want to know how to help.and what others do ...
Thankyou just had to write the nights are the worst and scared of future so little time ...
I am experiencing similar, although my husband’s prognosis is good so far. He is struggling with his mental health and has pushed me, family and friends away. All he does is watch Tv and sleep. He said he hates me. It’s just devastating. I miss him, I miss us.
I’m sorry I don’t have any solutions but you’re not alone, which is probably no help at all. I hope you get some good times with him soon.
This seems to be a reoccurring theme. My partner has pushed me so far away, I really think if he wasn't so ill, I'd leave him. Today he's told me he won't come to mine as it doesn't feel like home. I've offered to pick him up but he's made it perfectly clear he doesn't want to be with me here. That upset me today and I find it really rude to say what he did. His time is spent on either on the tv, 12+ hours a day or the on PC. He doesn't go out and I think this is affecting his metal health. I don't know what to do anymore
I’m so sorry. That is really hurtful. I hope that you are able to be kind to yourself, as it is nothing you’ve done but rather this disease that is causing him to behave that way. I hope you can find peace.
Ronella, I am so sorry to hear what you are going through, and the same with the other contributors below. We haven't begun the treatment yet, but my husband does struggle anyway with his mental health and can be very difficult to live with; I have to say that I have been worrying about how he's going to cope with the treatment and how his fears and frustrations might be taken out on me.
Think the only thing we can do is share our experiences, I think it's pretty clear none of us are isolated cases. Men can push their emotions to the back and go into their caves. I have never really known what the right thing was to do when that happens. I think over time I have learned to allow the space and not try to fix things. Trouble is when you are dealing with someone who is in need of practical support, such as regular medication, exercises, diet and you're the one reminding them of what they have to do, it's quite possible they'll lose it with you, and you're only there to help them recover or feel better.
Do you have anyone else to turn to for hugs and reassurance. It's not the same as a loving embrace from your husband/partner but sounds like you could do with a friend's shoulder to cry on. Don't be afraid to do that. Better release those sad feelings and get your needs met. You can only do what you can do, don't carry any guilt.
Take care xxx
Thankyou for your kind responses. We are struggling with his ascites progressing but talking with macmillan has helped face the inenvitable
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