Caregivers guilt :O(

Hi Choompster,

You and your husband are not being unreasonable at all. Quite the opposite, in fact. You've come to realize what just about all carers eventually realize - if you don't look after yourself, you'll end up in no condition to look after anyone.

I was my late wifes sole carer for about 7 1/2 years and it was only in the last 18 months that I became willing to accept help. It was literally a case of accept help in caring or have a physical/mental breakdown.

Most carers are of the opinion that they need to do everything, no-one else knows all the little details, no-one else would provide the same level of care, no-one else could do what what they do. All of those opinions are, mostly, 100% correct. But they don't factor in what the level, quality and quantity of care would become if you were no longer  physically, mentally or emotionally capable of providing it.

How guilty would you both feel if the level of care you provide degraded because of the build up of the physical, mental and emotional stress that being a carer entails. 

The disease cannot be avoided.

The burden you place on yourselves can.

You're not letting anyone down by protecting yourselves, but you put everyone at risk by not.

Be as kind to yourselves as you are being to your dad.

Hope this helps.

Peace :-)

Regardless of yesterday, the sun will still rise tomorrow.
As will you.

Hi Choompster, I cannot really add much to, "Panic's", reply, only to ask, have you considered your local Hospice for respite care for your father in law, ours is wonderful. best wishes.

Eddie

Thank you so so much for your kind words you are absolutly right, it is physical, mental and emotional stress . We do need to protect ourselves as well so we are useful for my FIL when he needs us. You've set our minds to rest a little. Im sorry this disease took your wife from you. 

Hi eddiel, we are looking at respite care. One week per month, we would have to self fund as he hasn't been assesed yet for any help with funding. But time is not on our hands and its a lot of money but we will do whatever we can to make it happen. Thank you for your reply :O)

Hi Choompster, your dad's terminal diagnosis, entitles, if available, him to free hospice/palliative care, funded by the NHS, and you and your husband can be assessed by your local council, to see if you qualify for free respite care, I know how difficult it is caring for a loved one, I cared for my mum who had terminal lung cancer, and hope you find the support you need, and please don't think the hospice is for those of us nearing the end, I have been going to mine for15 months, and hope to continue going for some time yet. my best wishes to you all.

Eddie xx

Thank you we have completed an online form with the council today for my FIL to be assesed. Im hoping this leads to something, I will call them next week to ensure its been completed correctly etc. They dont make things easy to understand sadly. I feel respite care whereever it is given is a helping hand, i dont look at it as nearing the end. I hope you continue to get the support you require as well xxxx Ps i should add I've been told by a few professionals prior to today that most of his free care he would only be entitled to when he is classed as only having 3 months to live ! At the moment his prognoses is 6 to 12 months but could be less or more..nobody will know for sure. x