My husband had his STC following extensive chemo for AML but we found out last month that he has relapsed and they can offer no curative treatment.
they are offering DLI but he has to have Azacitadine injections 1 week on 3 weeks off, 1 week back on then biopsy to see if it’s worked before DLI will be carried out. Then it’s on going all being well.
This has been such a massive blow .. he was doing so well .. back at work and feeling himself again finally. Now it feels that all the health professionals we speak to aren’t hopefully - we were told he has months left if it doesn’t work and probably 18 months left if it does !
I’m struggling to function anywhere near properly - mostly I just can’t seem to have any train of thought without my brain dragging back in “my husband is going to die soon”
I know nobody on here can actually change this situation but i just wanted to reach out to see if anybody else is either in a similar situation or if anybody’s got any coping strategies … I have spoken to professionals but although I aM a very open person .. they just don’t get how I feel ?
Thanks for listening
furbabymummy
Sorry to hear about your husband. Perhaps the nearest I can come to that would be when my wife was in a coma in intensive care are I was told 50/50 if she survived - she did and despite many adventures since she is still with me.
My turning point in our cancer journey was when I did a living with less stress course with Maggies. Part of that was learning more to live in the minute as it can be easy to get lost in anticipatory grief
Life still likes to throw us curveballs, sharing on here does seem to help where people get it because they have been/are there too.
<<hugs>>
Steve
