Struggling to support

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Hi, My husband of nearly 30 years was diagnosed with gbm4 in December 2022. He's had all the treatment he can but has started to decline since Christmas 2023. I'm struggling on how to support him. We seem to have lost each other. He hardly talks to me or our adult children. He is very much in denial of what he has and the future. I've been on this journey too and he doesn't seem to care how it's affecting us all. All our lives revolve around is this horrible cancer. He doesn't seem to think about anything else. To top it off his workplace are getting to the stage where they are thinking he can't manage anymore and his job gives him a purpose that he enjoys. I know they have a business to run but I think they are going to try to encourage him to finish. He's already said that will be the end for him if he finishes. He hasn't got many other interests sadly that he is able to do. He has been there 41 years! This whole journey is horrendous and I hate seeing the man I love decline and change like this. Its breaking my heart 

  • Hi Mrs Magoo, and a warm welcome to the forum, though sorry you have to be here and your husband has cancer. as you say cancer is a horrible disease and having a brain cancer that changes your personality and emotions, makes a difficult time so much harder. I have terminal cancer though not brain and it can be difficult to process at times, I can't imagine how much more difficult it is for your husband when the cancer is affecting how you think and feel, almost turning you into a different person, and i know it must be truly awful for you and your family too. I am also a dad as are some of my friends with cancer and it is heart breaking for us to see how our condition upsets our families and I'm sure your husband feels the same way, so maybe he thinks not talking will cause less upset. It's good that he is working and it gives him a purpose, this will help him though I am sorry to hear this may change, I know employers are supposed to make reasonable adjustments for employee's with cancer though sadly this is not always the case. Can I suggest you join, the Glioblastoma Multiforme Brain Tumour Forum, where you can talk to others who are going through a similar journey. best wishes to you and your husband, take car.

    Eddie xx

  • Hi  

    So sorry to read about your husband and the impact this is having on your family too.

    As  has mentioned employers should make adjustments and you might find it helpful to ring the helpline to talk to one of experts in our work support service

    <<hugs>>

    Steve.

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