Hello
My husband has 3 aggressive brain tumors that were discovered two weeks before Christmas. I was told there was nothing they could do and they sent us home. 3 months previousl to this we were told he had had a stroke. I now believe this to be a misdiagnosis, as his symptoms got worse. Until he fell and was rushed to hospital where after an mri they discovered the tumors. I was told there was nothing they could do, not even a biopsy as it was too dangerous, I was told to go home and have a good Christmas, I was told he had 1,2 months 3 at the most. So we went home. Suddenly hospital beds, commodes, chair cushions etc started arriving! He has not used any of them!
They put my husband on 8 steroids a day and this made a huge difference, no stroke symptoms! He could speak ok and walk better and eat better....but I was told to reduce them, I refused to as it was over Christmas and I wanted him to have a lovely Christmas.
So now we have reduced them, speech, confusion, blurred vision, mobility, fatigue are all back. I can cope with all of them, what I cant cope with is that for whatever reason he doesn't except he's ill, still thinks its a stroke. Why he thinks we have a palliative nurse, or that he's had loads of visitors, or why I'm off work is strange. But he does get so confused. So I'm caring for my husband, and he doesn't no why! Has anyone else dealt with this? Xx
Hi Ellie-B welcome to the forum and I am so very sorry to hear about what is and has happened for you both. Im not sure why that got missed as you think it has, my query is does it really matter if he doesnt accept that he is ill, what difference will it really make at the end of the day. He seems ok with what is going on and as you say you are coping so making him understand may not be possible given that things are advanced, as you say and that he is confused on occasions. Id be tempted not to argue to get him to understand but as long as he is ok and his thoughts are not distressing him. just tell him that you love him so much and you want to spend time with him.
gail
