Glioblastoma

Hi Flowergirl01 

You are feeling totally normal - we sometimes refer to this on here as scanxiety and sometimes if we can recognize that it can help us contain the feelings - a bit at least.

I am sure your mum will be so glad to see you are happy and have someone beside you. One thing perhaps, if she is able, would be to get your mum involved in the planning of the wedding.

Hopefully the results will be great and if there is something then the chemo will deal with that. I hope too your partner is getting the support they may need because this nasty diseases can have a long reach.

<<hugs>>

Steve

Thanks Steve x

Hi

My mum was diagnosed with GBM in 2019 and been a whirlwind of emotions ever since, I myself read a lot of articles and cases online and in a weird way found comfort in knowing I wasn’t alone and even though I was scared i can tell you now, after close to 5 years of dealing with the issues that arise I can say you will have good days.. always remember to utilise the support of professionals, friends and family as it really helps in lifting the weight off.. take one day at a time and always make sure to look after yourself. 

Thanks Eleven, It's nice to know I'm not alone. First we were told 3-6 months and then after operation it's 12-18 months. I guess everyone is different and some people do go over that. Is your mum still going strong ? after 5 years ? xx

Absolutely! Every case is different and you can’t predict any single outcome but I can speak for myself in saying we definitely did not expect to get this far especially after reading the available resources online at the time.. I remember coming on this very forum and not having the nerve to chime in due to the uncertainty. I can say everyday has its challenges and she has experienced changes in personality, mobility and temperament but she’s still here with us and with the care and treatment currently available anything is possible.. March 2024 will be 5 years since the initial operation and in that time our family has had 3 weddings and 4 new additions which shes been part of which thinking back seems so surreal. My best advice would be to take it one day at a time and be present for your mum as much as possible and not to forget to look after yourself too. I wish you all the very best x

Thank you, you've given me hope. X

Hi, I just wanted to let you know that mum's scan results came back and there is nothing there as far as the consultant can see. Next scan is end of March ! We are so relieved! So no chemo until its needed. Its the best news we could of hoped for. Her eye has settled down the consultant thought it was swelling. Thank you again for your kind words everyone on here is so nice.

Take care 

Flowergirl1 x