Hi everyone
I thought I would hop on here. I have been posting frequently in the lung cancer forum but I wondered if there was anyone I can connect with on here in a similar position to myself with dad who has just been diagnosed with locally advanced stage 3b lung cancer. We have been advised it is inoperable. Dad has a routine MRI head scan Saturday and we have our first apt with the oncologist 2nd January to discuss treatment. There’s been suggestion of chemo and radiotherapy combined and also immunotherapy durvalmab I think it is called. I am a person who likes to know a lot of info. I have Crohn’s disease myself. I am 31 and had this diagnosis since I was 15. I keep googling things and then coming across prognoses and that I start to feel terrible. I’m trying to think positive that this treatment will help my dad live as long as possible. It’s just hard to accept it is life limiting and I feel a little bit robbed
Adele xxx
Hi DELI and welcome to our little carers club.
It sounds like you have found a lot of information already but I wonder if you have seen our pages on supporting someone with cancer because it can be very hard but also very rewarding. The being positive time though I find much easier to write than do all the time and so glad to be able to share on here with people who just understand.
I also like to know as much information as possible but it is important to make sure we are a little bit selective - sometimes people tend to vent online and so we can sometimes find more negative stories.
<<hugs>>
Steve
Hi Adele,
We are doing ok though it is so helpful to get support on here when we need it, often this whole process is described as a roller coaster - often did the real things when we were younger including the "big one" at Blackpool.
I find quite a lot of inspiration in some bits of music and especially Lean on Me.
When I started talking about my cancer journey at work I found so many people came to speak to me who had never opened up about their issues - not the typical conversation in the coffee lounge but talking - or even typing - can help and gave real weight to the saying "a troubled shared".
<<hugs>>
Steve
