My partner came home after 3 weeks in hospital Having been treated with High calcium levels as his cancer metastasised in to his pelvis We haven’t been given a prognosis yet at they don’t know what sort of cancer it is yet and are awaiting a biopsy on his pelvis on 13th October he has also started palliative radiotherapy for symptom control whilst in hospital we saw a lot of Drs each with a different plan one saying that chemotherapy was a possibility once the biopsy results then another saying that chemo wouldn’t be an option We found out by a comment in passing that it had spread to his adrenal gland Then another in his spine As he was being discharged from hospital one of the nurses said he needed a blood transfusion and that could be done as an outpatient but we have no understanding of what that might do and when It might happen The 2nd radiotherapy session has made him very sick with. Loose bowels and he was questioning wether he should continue. To be honest I don’t blame him Does this treatment make any improvement in the quality of life ?
Sometimes the information you get is very disjointed and given in a bit of Chaotic manner and feels like some of Medical teams know some of it
I am not sure why I am writing this I am very happy as is my partner to be home But the crushing sadness and despair I feel is all encompassing
my love is such a proud man and he spent over an hour washing and cleaning his teeth to see visitors today It made my heartbreak to watch him trying to keep things as normal as possible
2 Months ago he was a fit positive healthy man always busy and active and on the go the decline has been so rapid which he has managed with such dignity… he says he feels useless and I tell him he isn’t he is sick
Hi Pumpkin66
Sorry to hear about your dad, my wife has had a couple of blood transfusions though hers were as inpatient. Fairly similar really to a conventional drip but with a load of extra checks to make sure the right patient gets the right blood - those blood types really make a difference! It generally took a couple of hours or so to run through in her case.
Dealing with more than one medical team - yes, totally get you that can be a complete nightmare. Even when they all work in the same hospital is seems nobody ever talks to each other - well perhaps outside the magical MDT meetings anyway.
When my wife was diagnosed she was clear she never wanted a prognosis. The thing with these is knowing what we do with the information when we get it, Also we need to recognize they are at best a guess based on averages of people from some time ago - who is this mr average anyway?
If you feel it would help you do remember you are more than welcome to ring the helpline here - fantastic team who I have sobbed my heart out to.
I love to hear your dad is trying to keep things as normal as possible. With cancer our live has changed beyond recognition but we are ok in our new normal for now. Life still likes to throw a curveball from time to time.
I have a benign enlarged prostrate - dignity goes out the window when the GP gets to check it out but then I think you went all the way through medical school and everything to do this! Each to their own I suppose.
<<hugs>>
Steve
