I posted in the beginners forum, tried to copy and paste it here as per moderator advice and I can't do it . Oh well, cut a long story short my husband is stage 4 no cure. We only found out in May such a shock. Immunotherapy only to buy time. 2 sessions in its attacked his liver so had to stop. 11 weeks of highest dose steroids ,slowly reducing and antibiotics. He has always had a bad temper , outbursts are not unusual but since the steroids his temper is awful and im constantly being shouted at. I have fybromyalgia, diabetes, arthritis and depression before all this was discovered. He keeps telling me to shut up, I am annoying him , he's being awful about my fybro telling me im stupid as I now struggle with remembering things. He was not this bad before and im trying to understand and be supportive but today I've just realised how much harder it's getting, ive stayed upstairs all day and evening to be out of the way and I'm just crying all day. Surely he doesn't want to spend the time he's got being horrible to me. Everyone else admires how he's coping. He's had some counselling, he said he's told them he's nasty to me . He's admitted he's taking his anger out on me. I just don't think I can bear it anymore. He wants me to look after him and stay home. I have been a carer for 20 years. I'm happy to do this but not with the anger. He's on anti depressant. Do steroids make his personality worse and will it improve when he's off them? We are only 4 weeks in to the 11 week course. He will go mad if I tell Dr's the way he's behaviour has got worse. If you've hog this far thanks for reading, it's not a happy post. I did think we'd be closer because of this but it's never going to happen. We havnt had a physical relationship for years as he can't, he was diagnosed with heart failure last year so no viagra allowed due to other meds, so there's rarely any closeness, his choice. Now he's having to give up his holiday abroad as wd can't get insurance. He's shouting at me saying its not fair.
Hi FloBonnie
You are coping with such a lot and just to pick on your last point "It is not fair" - well that at least is true - nor is it fair that you have all the issues too but then who said life had to be fair.
Some steroids can affect mood. Being a carer is hard and sometimes crying helps - I know I do it from time to time with my wife's cancer and sometimes if feel like I cannot cope. I have talked to the helpline on here. We are also limited on holiday options as my wife can no longer fly - even if we could get travel insurance.
Sorry, I don't really seem to be able to offer much in the way of help but want you to know you are not alone.
<<hugs>>
Steve
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