My partner (31) has stage 4 bladder cancer (spread to his lung and lymph nodes) currently on a trial and was told that he would have 2 years at best. I am 28.
For some context.. my partner was diagnosed on 1/12/21 very soon after we began dating. I have been with him through everything, chemo which included complications/hospital stays, multiple surgeries to have the tumour removed and now the clinical trial. Once I found out I moved to be closer to him 20 days later so that I could be there to support him.
It has been a horrible nightmare since he started treatment with anything that could go wrong happening. From chemo leaking into his chest, complications after surgery and more.
As we had only just started dating before he received his diagnosis, I don’t know him pre cancer which is where my concern is.
I was previously in a long term emotionally abusive relationship which has made me realise what I will no longer accept in a relationship. This includes being yelled at, receiving the silent treatment over little things and having my opinions/needs being ignored to name a few. Through those years I learnt to be independent and value my time alone.
My partner is the opposite, he does not like spending any time alone (he has mentioned that he has always been this way) and gets incredibly upset if I want to leave the house to see friends or family. He is currently feeling better energy wise and is working/able to help his friend move/go to the gym etc but he refuses to help around the house.
I understand as best as I can that he is in pain and I try to be as helpful as possible but I am absolutely burnt out. He has never washed a dish (or put them in the dishwasher), cooked me dinner, cleaned the floors, helped with laundry, made the bed etc since I have lived with him (over 1 year now). We have had discussions about this and he has said that he only has 2 years left and doesn’t want to spend his time doing these things. He often says “you do it better” and “there’s no point learning new things” when I try to show him how to do something.
I try my best to get through most days but some days I am so overwhelmed and suffering from panic attacks but he refuses to do anything to help me. Even when I am like this there is still the expectation that I will make dinner, dessert, clean up etc.
He makes comments such as:
“We should clean this” (knowing that he means I should)
“I can’t do that, it’s not a tall person job” (I hear this multiple times a day)
“I don’t care how the house looks”
“It doesn’t need to be cleaned”
“Why don’t you try having chemo and see how you feel”
I have been yelled at for not wanting to spend my day off in bed next to him while he sleeps (he works nights), for not bringing his diary or meds to his trial appointment (he had them out for himself to bring), for not being able to go to 1-2 appointments in total because of my work schedule, for asking for help with things, dinner not being ready quick enough etc.
I am posting this because I need advice/to hear other carers experiences. I feel this horrible feeling of guilt for being disappointed that he doesn’t help me while at the same time I feel that I am being emotionally abused and used.
Thank you all so much for sharing your feelings honestly here. My lovely husband of 24 years has stage 3 stomach cancer which is incurable and inoperable. I love him to the moon and back but just don't like him very much right now. Just writing this is making me cry because I feel so damn GUILTY! I'm exhausted physically and mentally and trying to be super human when I know like all of us I'm just human really. I'm lonely and lost and grieving for a future and a relationship I no longer have. Thanks for the sage advice to live in the moment, its all any of us have got when you think about it so we may as well enjoy it! For anyone with a Maggies Centre near them please do pop in I have found their support invaluable, I hope you do to.
I think you summed up how many of us feel, and the awful feeling of guilt that goes along with it. I can only echo what you said about grieving for a future and a relationship we no longer have, I am really struggling with that just now. Its almost like grieving before the person is dead, its a horrible feeling. I have been with my partner for 32 years, she has metastatic bile duct cancer which all happened so fast. In the space of 4 months, we have gone from celebrating her retirement with not a care in the world, to her receiving end of life care. We have so many emotions to deal with all at once when this happens to us, so guilt is the last thing we want but you must allow yourself to have these feelings, they are a natural part of the healing and grieving and it would be worse to deny them and bury them deep inside of us. The physical and mental exhaustion is bad enough without anything else added in! Sending you lots of love xx
It's so complex, when my Mother was going through a similar thing even though I knew she was dying I couldn't accept it. Even when the Vicar came to give her last writes, I thought what's he doing that for it's too early. Hug for you, it's a crushing thing to experience.
It's almost as if you're not allowed to have needs. They are so needy. You need to explain maybe if you don't do something for yourself occasionally you might crack up. Word it how you need to. I was a carer for 2 family members at one time. Been there worn the t-shirt, became insomniac went on antidepressants you get the picture. Neglecting oneself for too long leads to health issues. I was in a group with other parent carers I hear you. Self care so so important. Going to a gym even for half an hour, having a fast walk. Xxxx
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