My husband has cancer and has had just had a second round of immunotherapy. We aren't too hopeful of its success as the oncologist said that it looks like it's spreading after the first treatment but wanted to let him have another try before a scan. After this there are no further treatment options. Since the treatment he's been very tired and in lot's of pain. He's sleeping most of the day and has increased his pain medicine on the advice of the palliative care team. I'm scared that he's near the end and we aren't prepared. We have young children and I'm scared every day that I will wake to find him gone. No-one has been able to give us a time scale and if the immunotherapy works he could have years but right now I feel scared and alone. He's too tired to talk about my concerns and I could be completely wrong about why he's sleeping so much. Has anyone got any experience with how their loved one reacted to immunotherapy or what signs to look for if his life is coming to the end?
I completely agree, the rollercoaster effect is incredible, and not in a good way. I think it is partly fuelled by your criteria of what is "good" and "bad" and how they change as you go through the diagnosis and treatment journey. We were in that horrible period of waiting for scan results between diagnosis and treatment and we were so frustrated at the lack of progress. However, we had settled into a routine of "managing" each day and I actually became comfortable with it. I actually started to worry that when we got the appointment it was going to be bad news, along the lines of "there's nothing we can do" etc. I actually found myself relaxing at the weekends because I knew we weren't going to get any bad news for a few days at least. When there is a terminal diagnosis it is so difficult to remain positive and see anything good. I have no answers I'm afraid, just endless empathy for your situation 
