Hi I am new to this group. My husband has been diagnosed with stage 4 cancer of his Tonsil which has spread to his Lymph nodes. He has just finished 30 sessions of Radiotherapy and 2 rounds of Chemotherapy. It has been such an incredibly stressful and upsetting time and so awful to see him go through such gruelling treatment (I am sure you will all be able to relate to this on this site) . This has been made worse by some insensitive remarks I have recently experienced. A few days ago I was approached by a local dog walker (just and acquaintance don't even know his name) who told me "I hear your husband has cancer" and he then went on to tell me (in detail) that his friend had the same cancer and died of it and how awful it was. This is not the only time I have experienced this but not as bad as this. Negative comments was the last thing I needed to hear at this time. I was shocked by his insensitive remarks and although I said nothing to him at the time I felt so angry with myself for not saying anything to him later. Just wondered if anyone else on here has experienced insensitive or negative comments about their loved ones cancer and if so how did they deal with it.
Oh how awful! I think it is hard for people to know what to say. They start by trying to be sympathetic and then to show they know something of what you are going through and suddenly it becomes about them and their suffering and you end up thinking “and how did we get here and how should I respond to this?” I try to remember that they are trying to be nice, even when they get it horribly wrong and make you feel worse. My husband has the opposite issue… everyone is trying to be cheery snd say “oh, you’ll be fine” but of course that isn’t always helpful either because it feels like they don’t understand how serious it is. And then there are people who don’t know what to say and so say nothing. The best ones are those who politely inquire and then just listen. My husband and I have bonded a little over joking over the most inappropriate things people have said. Again, I let him lead here because I don’t want to get it wrong myself… bitterly joking about something that is not a joke. I wish you peace and comfort… I finally went to a therapist because I needed someone I could share my raw emotions to without having to filter. That helps keep me emotionally resilient for everything I hsve to deal with.
Hi Juppy
Thank you so much for your reply which has really helped me make sense of why people do this. I agree they are only intending to show sympathy but I wish some people would think about what they say before they say it. You are so right when you said the best ones are those who politely inquire then just listen. We have amazing and really supportive neighbours (3 of whom have experienced cancer in their lives themselves recently too) they will always inquire and listen. Sometimes we just want people to just listen. Thank you so much for your advice once again. It is so good to speak to someone who has first hand experience of this awful disease.
Hi Tony 73 I am glad I said nothing too. We also wondered how this man knew as we did not tell many people. My neighbour who's mum passed away from terminal cancer told me this had happened to them. It suddenly became public her mum (who lived with her) had terminal cancer even though her mum made it clear she did not want everyone to know. My neighbour told me she later discovered that it was her mum's best friend had been upset with the news and then told everyone. It appears that some people are just unable to maintain confidentiality. I have learnt from this experience that is wise to tell only a few selected trusted people who you know are able to keep quiet.
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