We are 2 1/2 years into our terminal kidney cancer journey. My husband used to have more good days than bad but now the balance is shifting. I have a great doctor who is helping me, friends, family and an approachable councellor. Despite all this I feel overwhelmed, breathless and unable to cope. I feel guilty, useless and dishonest.
I explained all this to my doctor who told me it sounded like anticipatory grief. Now I've read up about it I can see so much of how I feel for how what it is.
I read an article which said this:
Here is the thing about grief – though we think of it as something that happens after a death, it often begins long before death arrives. It can start as soon as we become aware that death is a likelihood. Once death is on the horizon, even just as a possibility, it is natural that we begin to grieve.
If, like me, you are finding your feelings hard to deal with you may find reading about this helps. It has made me feel like less of an unfeeling monster.
Hi EthelM,
Thank you for posting this. I can certainly recognize the element of grieving for the life we expected - the growing old together, the trips abroad - Janice, my wife, is medically advised not to fly so any great plans to see the world have gone.
I was at a family funeral recently and the celebrant said that grief is the price we have to pay for love - that really resonated with me.
<<hugs>>
Steve
Hi Tina, the article really did help me see that I'm not the only one and not the self-serving monster I felt like. There are so many hard days, I find myself rereading it.
Thankyou for posting.
Hi Cakey, you can't do everything for mum, like me, you need to give yourself permission to not manage sometimes. Our local hospice provides night sits to help carers get a good unworried night. You could ask yours or Macmillan. Are you able to take a sabatical? You may be able to get carer's allowance to live while you do?
Thank you for the suggestions.Apparently our local hospice offer 3 night sits per week if needed.I had no idea really that all these wonderful people were there to help.I am a teacher but have decided to go part time from September to support Mum and have a lovely family who are all keen to help.Found it very upsetting when Mum was in pain early this am...they seem to have got the dose right now to prevent this but I felt totally powerless to help.
Kate
Hello Cakey, I'm caring for my mother who is now very frail and has triple negative breast cancer which returned and she has metastases in various places. I took a sabbatical from work - it's unpaid but at least it gave me an option to keep my job. I have been granted carer's allowance. I work in education too.
Thank you
I hadnt thought of a sabbatical....Everything was manageable until last week when things went into a very sudden decline.Not sure that I can get things in place before term begins.I have more options than I first thought so that makes me feel a little more able to face this.
Kate
My school were very helpful and it was quickly arranged - in the meantime don't hesitate to ask the Dr to sign you off if you are suffering with stress, though - I waited too long. I do hope things go well and you are able to feel more in control x
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