We are 2 1/2 years into our terminal kidney cancer journey. My husband used to have more good days than bad but now the balance is shifting. I have a great doctor who is helping me, friends, family and an approachable councellor. Despite all this I feel overwhelmed, breathless and unable to cope. I feel guilty, useless and dishonest.
I explained all this to my doctor who told me it sounded like anticipatory grief. Now I've read up about it I can see so much of how I feel for how what it is.
I read an article which said this:
Here is the thing about grief – though we think of it as something that happens after a death, it often begins long before death arrives. It can start as soon as we become aware that death is a likelihood. Once death is on the horizon, even just as a possibility, it is natural that we begin to grieve.
If, like me, you are finding your feelings hard to deal with you may find reading about this helps. It has made me feel like less of an unfeeling monster.
I was a teacher before we moved and then he got the diagnosis. Teaching didn't fit in with our new needs so I found other work. Luckily hubby is getting some benefits but until he's unwell enough I cannot claim carer's allowance. I try not to be out for too long and also make sure that I am home for hospital appointments. It's tough but we all find a way don't we.
Thank you for sharing that link. Just had a read and “normalises “ a lot of the feelings I’m having
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