Feeling like I’m lost in a thick fog !

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Hi all,

my wife of 12 months (we met and married late in life now both in our 60’s has been diagnosed with gall bladder cancer, despite having it removed in 2017. This is because consultant believe bladder was cancerous when removed by keyhole surgery, and cancer cells were wiped off the surgical equipment as it was removed  through the keyhole cut. Approx 18 months ago she started having major problem where the would originally was and a growth was felt. She was seriously let down by NHS because in June 2020 she saw a consultant at local hospital who said growth approx 1cm but nothing of great concern and referred her to pain management. Fast forward to April 2021 and a general surgeon operated and removed a cancerous growth the size of a fist, it had connected to her liver and ribs !! If only the consultant in July 2020 had been more curious about the mall growth and the skin that was clearly dying around the growth.

She is now undergoing chemo and inevitably suffering some after effects primarily fatigue for 2-3 days following, and others. We are both now in counselling and on anti depressants. I have always tried by be a glass half full person and continued to hope and pray that she will get through her treatment and we would be lucky enough to get a few more years to enjoy together.

However, this week we have been looking for travel insurance which is a challenge as many of you will know. Given the questions asked by insurance companies it led my wife to get quite upset and in discussing this with her she broke down saying she had something to explain. She eventually explained that during her very first chemo session her consultant managing her treatment it was explained she was terminal with a possibility of 12-18 months !! Since the first session she has kept it to herself because she wanted to protect me from the obvious trauma and upset.

I now just feel totally lost and suddenly it’s like the anti depressants are no longer working, maybe shock but it really is like I’m living in another world with my terrible thoughts for company. It’s like I cannot believe what she says is real and this is all just a terrible nightmare, feel like my head may explode any minute and I have no motivation for anything any more. I cannot tell my wife because she will just worry far too much about me, when she was recently in hospital I had a tachycardia attack at home which needed paramedics to rush to the house, as I do suffer heart disease and have a stent they advised the attack was due to the stress and anxiety I was under. Can someone out there work a miracle for us please, my wife is truly my one and only true love and my life, without her I just cannot see a future at all.

Sorry for the long winded post but I just feel so desperate and lost.

Best wishes to you all

Paul

  • Hi Paul

    I'm so sorry to hear what you and your wife are going though.

    I am in a similar situation with my husband being diagnosed during lockdown 2020 with mestastic colorectal cancer which had spread to his liver. Our worlds stopped turning for a whole year of treatment, radio, chemo, immuno, 3 surgeries. Unfortunately it has spread and he's been given a similar diagnosis of 1-2 years.  I found it i credibly difficult to deal with everything ans and our 2 young children at the time. Anti depression tablets helped me and I will ask for them to be increased once the time comes. We are trying to build special memories while we can, that's the only thing we can do. I did a swim challenge to distract me and help my mental health, a virtual 22 mile swim the English Channel challenge for macmillan. Maybe that is something you could do, a walk or something like that? It really helped me. Xx all the best Cheryl x

  • Thank you Cheryl for your response, much appreciated.

    I increased my anti depressants in the hope this would pull me around, but sadly not. The thought of losing my soulmate for whom I live my life, and who has given me the happiest 6 years of my 64 yr life is consuming my every waking thought. I feel overwhelmingly guilty at having any “happy or cheerful” thoughts knowing what my wife is and has to go through. She has spent her life looking after her health, last year I had a scare with a nodule on my lung but got the all clear, at the same time I was diagnosed with heart disease and had a stent fitted and came thought that completely. Yet my darling wife who is such a loving gentle person is the one to suffer in this terrible way, for me I hate having to leave her for a single minute (shopping, walking dog, etc..) and feel bad every minute I am away from her side. At times I feel like I may just explode with the stress, anxiety and guilt.

    the thought of life without her in it is totally unbearable !

    regards

    Paul

  • Hi, I totally get where your coming from… a fog that never lifts, you go to bed and it’s consuming, you wake up… well that is if you sleep and the darkness and thick air is still there! 
    I don’t have a answer, all I can say is your not alone in these feelings, I found myself in the middle of Sainsbury’s without a clue of what I was buying but in floods of tears… not a pretty sight! I know they say to take each day as it comes but maybe if you can a little walk or a drive in the car sit, on a park bench, read a book together just something different just so that everyday you have a positive with a little memory which you can hold onto.. sit and listen to music together or watch a film… plant some bulbs for spring.. spend that precious time together, a holiday in the UK can be as beautiful as some foreign places too!

    For my children and I it’s making the most of the time we have with their Daddy and my amazing hubby, for them to do firsts with him, shave, drink a bottle of beer, dancing in the rain, driving a car etc…. my children are all under 15 but it’s life’s firsts which might be a bit early, but still important for them to experience with their Daddy! 
    Good luck x

  • Thank you so much for your reply and ideas, really appreciate hearing from others who understand. We did actually manage a 3 night break in Northumberland a couple of weeks ago. As you say we did a little walking but my wife gets tired very quickly. We also have a small dog but my wife is unable to do any long walks with her. We’re hoping she will be well enough to go on a cruise we have booked in October, it was booked long before her diagnosis. We do still enjoy going out for a nice meal when she feels well enough which we really enjoy. We are lucky in that we have no young children, but my wife has asked that no one is told of her latest diagnosis until it becomes unavoidable. She has always been a very private person.

    thanks again and best wishes to you and your family