I’m not sure what I’m looking for here, but here goes.
my mum was diagnosed with stage four lung cancer which has spread to her brain. It happened so suddenly. Last week we met the oncologist who had been impressed with how she was doing on Dex and referred us to radiology. But when we met with radiology they said mum wasn’t strong enough, and she only has a couple of months left.
im waiting to here from her oncologist and have spoken to the nurses but I’m so frustrated. I understand mums not strong enough but she seems fine and is improving everyday. On top of this I am working full time and caring for my sister with Down’s syndrome.
I guess I was wondering if anyone was going through anything g similar or had any advice. I’m exhausted and I just want what’s best for her.
Hi and welcome to the community, though so sorry to hear about your mum.
From what I read above it sounds like at best the radiology team were less than sensitive. Unless someone asks for a prognosis it is not perhaps the best practice to offer one so I can feel for you.
I also work full time and my son has autism and in our case it is my wife who has the cancer.
Often of course there can be debate between different specialities as if something else might be helpful. It may be worth having a chat with your mum's oncology nurse around the question of what might make it that radiology might help your mum though there needs to be a discussion too as to if the radiology might make no difference and then be a lot of time and effort on her behalf when she could have been doing something less stressful.
<<hugs>>
Steve
We have been here for 8 years with the cancer. Biggest "oops" moment for us was when we took our son to introduce him to Maggies and as we arrived at the hospital he said "have we come here to leave mummy?". When Janice asked him if he was ok he asked what happens to me if daddy was ill too - fortunately we had that covered as her brother is named as guardian and they have an adopted son already, Perhaps a key element is plan for the worst, hope for the best and enjoy every moment,
Take a notepad to the meeting and if there is anything you need explained someone on here will probably know and if not there is always Ask a Nurse - they are super well informed.
<<hugs>>
Steve
