HI Alnhaze welcome to the forum. Can you give us a bit more information about things is this you we are talking about or someone that you are caring for.
Im a bit confused as to how no prognosis has been given and yet you seem to be saying most likely just months to live? If you could give us more detail we may be able to help and offer some further information for you. Thank you.
Hi Gail. Thanks. My partner has been living with a oligodendraglioma for more than a decade. It has developed slowly and it has been treated with Chemo and also debulking surgery. In April 2020 it was again seen to change and she had radiotherapy in August. Since then although scans weren’t too worrying by themselves, her condition both physically and cognitively deteriorated significantly and she had several weeks in hospital - all of December and January with no improvement. A scan early in February showed further changes but it was decided that no further treatment would now improve her quality of life. She has been at home now, completely bed bound, since Jan 25th and we are supported by local authorities and NHS. Her consultants and GP accept that she now falls into the palliative care category but because the tumour is now being allowed to run its course we have not been told anything more than her survival could be months but it’s impossible to be any more accurate. Btw she is only 73 years old.
my mum is the same age and has been fighting this for over 15 years shes had 2 biopsy operations juat to get onto clinical trials (immune therapy) but they didn't work, she had surgery followed by radiation and chemo initially which stopped it for at least ten years but then it returned and nothing seems to be able to stop ot from growing this time. It's hard to watch them become so weak and the last biopsy almost killed her so its hard to know what the right thing to do is.
