Coming home from hospital

FormerMember
FormerMember
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Hi all...I’ve brought my husband home from hospital today, he has mesothelioma and we have brought him home for palliative care. We were told by doctors this week that his life expectancy has decreased to weeks now and they can’t be certain just how many that could be, in my husbands case, the cancer is growing rapidly.

Im really worried as to if I will be able to look after him in the ways he needs...don’t get me wrong, I want to look after him, I’m just afraid I won’t be enough. Is this a normal thought? It’s so heartbreaking seeing the one you love going through this, he’s always been the strong one, I just want to do everything for him I can.

Any advice that anyone is happy to give will be a massive help. Many thanks x

  • Hi

    So sorry to hear about your husband and your feelings as absolutely normal. One of the issues with any prognosis of course can be what does it really mean - being told weeks and starting out it can feel I can do this for 3 weeks but then things can both get more serious and it stretches to a few months - to the point we have nothing left to give.

    Hopefully you have a care plan in place to support you both - if not talk to your GP about getting a needs assessment for your husband and a carers assessment for you. I hope you both manage to make the most of the time together with the right support in place.

    <<hugs>>

    Steve

    Community Champion Badge

  • Hi Dragonfly 109

    Im sorry to hear about your husband. Unfortunately I can’t offer help or advice to you, as we are yet to reach this stage, but I know it is coming. My husband has already said that he wants to end his days at home (as he was actually born in our house). I know exactly how you are feeling because,  while I want to do everything I can for my hubby,  I am so scared that I will not be able to care for him properly. 
    I really hope that you get the help and support that you need. I have been told that if there is a local hospice they will offer support for you even though your husband is at home. May be worth looking into. 

    Jillybean74