Heartbroken

Hi Lou, I’m so sorry I didn’t see your post last night, as I would have liked to have reached out to you and let you know you were not alone. Hopefully, you got through the night and got a little sleep, I’m sure someone will be along soon to offer more help and support but in the meantime maybe re-contact your GP or the District Nurses.

I’ve found the district nurses really supportive and helpful down here in south Devon, he has one visit every week to take bloods and flush his picc line. The hospital found a large pulmonary embolism on his lung when he had his ct scan, I now inject him daily with blood thinners to hopefully stop a reoccurrence.

I understand how hard it is to see someone you love suffer but there are so many kind helpful people on this forum who will will, I’m sure will be able to offer you help and support.

Hang in there darling....big virtual hug budge x

Thank you for replying, last night wasn’t good. Mum called me in several times and was quite upset and frustrated in the end. It’s really hard for her relying on me for her personal care. 
She had a bad morning but picked up a little... however I just got her to the toilet and she thought she was going to pass out (her blood pressure is very low) and she was sick earlier. We are waiting for the district nurse to come and oncologist to ring. Im glad you’ve had good support as I can tell you... when you don’t get that support it’s a very lonely time. 
im so shattered already and it’s only the first 2 days. 

Hi, has today gone any better?

It sounds like you are both have having an awful time of it, my heart goes out to you. We only see the district nurse for 30 minutes per week but they always say to ring if I need help but I don’t know how that would work late at night when no one is there. My husband’s nearly 6ft 4” so I’d have no chance of physically supporting his weight but I guess it’s something I have to think about as he deteriorates. 

Take care
Big hug.....budge

Hello Lou8124

I’m so sorry to hear about your situation, I’m sending you both strength and courage. It sounds like you are doing a tremendous job, your mum is so lucky to have a daughter like you x

On a practical note, I wonder if social services may be able to help arrange some home care to help mum with personal care? If not, is there a local community therapy team who may be able to provide you with some equipment (a frame if mum can walk or a commode). I know these won’t help address your bigger concerns but they may help a little.

Do keep in touch on here whenever you need to, we are all happy to help and listen.

Take care

SP

The best thing to do is speak to your mcmillan nurse if you don't have one ask your gp to refer you, you need help.

when my husband as ill they arranged for carers to come in twice a day to help him with washing etc and they also arranged for night sitters so I could get some rest. Please ask for help if it's not offered you can't do it all by yourself. 

HI Lou  I'm sorry you're  having such a rough time. My heart goes out to you. I've no magic words to help but just wanted you to know you're not alone. Stay strong. Sending you love and light and big hugs xx