Trapped

FormerMember
FormerMember
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My husband has had cancer for 11 years. 6 years ago he was given 9 months to live. At the start I had one child age 2 and I was pregnant. We lived abroad so no family near.

We lost our business, house and lifestyle. We returned to the UK. My family are supportive if I ask. We are not emotionally close. His family are unsupportive.

My husband gives everyone the impression everything is fine to friends. It isn't. And pretending it is isolates us, me. People dont understand how difficult it is at home. How run down our life is. How empty our relationship is now. How his drugs and disabilities mean we can't keep up with other people. How we cant offer the children many experiences other children have partly financially, but also energy wise. Im drained.

I try so hard to keep everything together but it's a battle. I get no gratitude. No love. No reciprocal effort. And after a decade I am runing out of reasons to keep going. I have kept everything together at great cost to myself. 

I want my children to know what a loving relationship looks like. What cancer free family life is. I want someone to wrap me in their arms and just hold me. I don't want to pretend everything is fine whilst feeling so lonely.

I dont want to live with cancer any more. And that means divorcing someone who has terminal cancer. How does anyone do that? It would mean the children loosing their home, again.

I feel trapped. And it feels never ending. I need solutions. I dont think there are any. So I carry on. And I am failing.

  • Kat

    there are a lot of us on here that feel like you do, this week our story has changed a lot both my husband and daughter are on palliative care. My daughter this week has been told there is no more treatment and her cancer has progressed . I have felt very lonely this week ,I have a lot of family and friends who all say call me I’m here. It’s difficult to talk when your sobbing. My daughter is only 37 yrs. I think you start grieving as soon as you are told and trying to be normal for 11 yrs must have been a strain . It sounds like you need some you time. I joined a dance class and paint class that helps to have something else to talk about and relax . Find yourself .

    daisyrose

  • FormerMember
    FormerMember

    Please pm me if u fancy a chat x

  • FormerMember
    FormerMember

    I joined this group a few months ago then didnt really post anything as I didnt know where to start but thank god I've read through some of other peoples posts ,please dont think your failing ,I feel the same but were not failing we are living with loved ones illnesses that we have no control over ,you have had years of coping and worrying and please believe me I know your heartache and feelings of despair ,how I wish for a normal life / day again ,I tell myself that ok we have to adapt to our new life ,it is so so hard when nothing is normal nothing is the same ,living from one hospital appointment to the other and having no sympathy from your loved one if your feeling down or frustrated is heartbreaking ,I'm there ,that's me too ,I could go on with a really long blog and will post more ,please anyone who needs a chat or  moan just get in touch with me I could do with all the friends I could get at the moment .my situation is husband malignant brain tumour ,diagnosed March 2019 ,things arnt going well  ,his personality change is the worse, I've lost my husband already even tho hes still here ,my beautiful wonderful mum diagnosed a week before my husband with stomach cancer which has now spread to her liver ,she doesnt have long now ,both in laws with bowel cancer , both diagnosed 2016 ,all being treated at the same hospital ,the last few years have been awful ,I'm hoping I can keep strong ,I have to pull myself together every day and I know there are 1000s of others like me doing ,this we need to support each other . Sending my thoughts to everyone please keep in touch .

  • FormerMember
    FormerMember in reply to FormerMember

    Hi everyone I have literally just posted this in another group and then joined this one and read this- suffering marriage or relationship problems as a result of your partner’s diagnosis? My husband is 40 next month, we have two young children but in Feb 2019 he was diagnosed with non small cell lung cancer with secondary stage 4 bony metastasis. He’s on a drug called Afatinib, suffers daily back pain and has obviously been shielding for these last few months. I’ve been off work since the February 2019 and we have spent such a lot of time together. We are just not right. I’ve recently broken my wrist and can’t do as much as I was before which he seems to resent me for, and sometimes I have overwhelming guilt that I have really resented having to do everything in our house. I have said a couple of times that if he carries on talking to me in a particular way and  being grumpy (which I perceive is always my fault or because of something I’ve done) I will leave. This morning we’ve had another row and he’s said that I’ve threatened it so I should do it if that’s what I want. Of course it isn’t but I just want my normal good humoured husband back.