My partner was diagnosed with oesophigal cancer a year ago. After 3 cycles of chemo,- with a view to having surgery, it was determined that surgery would be too risky. I support him in his decision to have no more treatment. He hated chemo and it's side effects and believes quality rather than quantity of life. However, I am finding it more and more difficult dealing with it/him, it's like having a young child again. He gets up, wanders around the house and garden, sleeps and repeat. I have been isolating with him for the last 8 weeks (normally would work 7 hour day x 4 days a week) .. maybe being with him 24/7 hasn't helped ! I get feelings of anger towards him, but can't get angry with him . The worst thing is sometimes I think I wish he would die, be out of his suffering and selfishly, I would know what my future would be.......... then of course is the feeling guilty for thinking that way. Oh, I do feel so sad, confused and useless. I love him with all my heart....... but he isn't the same person.
Hi jillswills,
I was my late wifes full time carer for 7 1/2 years. I've been where you now find yourself and I feel your pain. While I was caring for my wife, I learnt so much - about myself, about cancer, about caring, about us (as a couple).
Looking back, caring for her has made me a better person, but it has been a long road to recognize this in myself.
The first steps down the cancer road can be, for the carer, horrifying and stupifying. Medical terms you're not familiar with, treatments no-one fully explains, schedules that seem impossible to meet, that horrible moment when partner become patient - the list goes on.
I've posted several answers here on varying topics. Below are titles and links to those answers, but please bear in mind that everyone's cancer journey is unique.
Planning ahead
This may seem coldhearted, but practicality is your friend.
https://community.macmillan.org.uk/cancer_experiences/nearing_the_end/f/nearing_the_end-forum/187453/creating-a-checklist?Page=0#1381121
Feeling overwhelmed
https://community.macmillan.org.uk/cancer_experiences/carers_only/f/carers_only-forum/186920/23-and-completely-lost?Page=1#1377783
Ask questions
If you don't understand anything, keep asking until you get an answer you do.
https://community.macmillan.org.uk/cancer_experiences/carers_only/f/carers_only-forum/184783/what-am-i-allowed-to-know-ask?Page=0#1364090
Looking after yourself (AKA carers burnout)
It may seem counterintuitive, but you MUST look after yourself so you can look after your wife
https://community.macmillan.org.uk/cancer_experiences/carers_only/f/carers_only-forum/178031/mood-swings-and-aggressive-behaviour?Page=0#1323453
Pasta disaster (AKA when the man has to start doing the cooking)
https://community.macmillan.org.uk/cancer_experiences/carers_only/f/carers_only-forum/180925/recipe-blog-for-carers
I truly hope there is something of value to you and your partner in these. If not, please don't hesitate to reach out to the others on this forum. There are some remarkably compassionate and wise heads in here. Don't be afraid to ask.
Hang in there sweetheart.
Ewen :-)
I could have written this myself .Its not wicked at all its a very human response to an impossible situation .Bill too had oesphageal cancer he did have the op which caused neuropathic pain in his rib .Althogh surgery was sucessful he was already stage 4 by the time they operated and had brain mets .We have stopped treatment after two awake brain surgeries and two lots of stereothatic radiotherapy We decided enough is enough .That was January of last year he is now very unsteady on his feet falling over every where and unable to understand instructions like stand up sit down etc .Pretty sure brain mets are progressing but its horrific to watch.After 4 and half years Im broken literally hanging on by my fingertips .Covid 19 couldnt have come at a worse time .But not really surprised Bill never got a break from the beggining and in hindsight we shouldnt have had the second lot of treatment to the brain .Its hasnt improved his quality of life and had just prolonged the agony .Just remember at 3 in the morning there are many of us rowing in the same boat trying to negotiate the rapids .Many hugs stay strong get support if you can even if only over the telephone.And of course on here xx
Granny Sue
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007