Dear Anyone...
My husband has Bcell NH lymphoma and this is 3rd year of our battle. He has just completed 3 cycles of RICE chemo and now waiting to see if his bone marrow transplant will go ahead. He is under a London hospital and obviously Covid has an influence on the situation.
He has suffered sickness and anemia throughout treatment and needed several blood transfusions. One requiring emergency visit to hospital with suspected Covid infection on either side of us in A&E..Very scary, but we had our own masks & gloves thank god!
So that’s a bit about where we are. We have always managed to ride the tide of emotions, deal with a lot of external family pressure and duty. Recently however, I am not sure if it is him or me but things feel...broken
He has become very impatient, short, intolerant. Everything is my fault, of course But given that he has fallen out with his mother (not hard - she’s horrible) his brother and now picking on me and all in the last three weeks does leave me wondering if there is more to this!?!
I have tried talking to him and he says he feels unwell physically but fine mentally, it’s everybody else! Still leaves me crying myself to sleep at night.
To actually write this down has been cathartic. I would love to hear any advice, experience or views thank you
That's just it 'we' have made a rod for our own backs.
Tell him where to put his list !
Hi me too.
Our daughter of 25 has just been diagnosed with Hodgkin lymphoma, she has been living with her boyfriend for the last 6 months . Since she was diagnosed she has become very distant, when me or my husband ask if she’s heard from hospital or how she is she gets very touchy telling us that she does not want to think about the cancer all the time and wants a break from it . I can’t imagine what’s going on in her head right now , if I try it’s so painful and I understand that she need a break from thinking about it but it’s so hard for us to let go as she is still our little girl.
because of the present situation she may well have to go through treatment without us even being able to visit her or hold her hand when she’s having a bad day after a chemo session .
I really wish I knew how to help her get through this without making her feel as if we are trying to take control.
sharon x
Hi Sharon
I really feel the pain that your going through. Our son is 25 and is the same he shuts himself off from us and we find it hard to get through to him.
Please feel free to message me. 25th August we started this journey. I still can't believe I am on this journey or forum.
Hayley x
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