Hi, my mum originally was diagnosed with incurable breast cancer 2 years ago, with lung mets. She responded well to pablociblib and letrozole to remain stable but last summer a CT scan revealed an advanced ovarian cancer ( she is since diagnosed BRCA1)so she elected for radical surgery and started her chemo to follow that in December. She therefore stopped the drugs and has just finished her 4th round, with 2 to go.
Each time the side effects worsen, and she says she really cannot tolerate any more. I don't want to see her go through this, but should I try to encourage her to continue? This is treatment to delay, not cure, and I worry with the Coronavirus bug about all the hospital visits. We have patient transport and have to wait for a couple of hours in a public waiting area to get home. What do I advise?
Thanks.
Hi , I'm sorry to hear about your mum and I can easily understand your concerns but, the only experts are you mum's specialist nurse and the team, and they are the ones to ask. The specialist nurse will tell you when you call, I'm sure, whether it's safe or not. Call a.s.ap. to put your mind at rest.
Hugs,
LoobyLou
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I totally feel your pain, my husband decided to stop receiving chemo as he had very severe side effects and it just made him ‘more ill’ if that’s possible ... his cancer is terminal and only he can really make the important decision as to whether to carry on with the treatment or not but I think he made the right decision.
That diagnosis of terminal cancer was bad enough but now with the COVID19 pandemic, like you I am so stressed out every time a hospital appointment has to be kept or a new prescription has to be picked up ...
I am having to give him daily blood thinning injections for a blood clot and have four alarms set up on my phone to remind me about each medication he needs. Before retirement I was an office worker, nursing does not come as second nature, but you carry one don’t you ....
Hi Emanjay, oh my you've really stepped up to the mark to do what you have to and I take my hat off to you. I don't know how I would cope with having to give injections, but as you say, 'you carry on'. I understand your worries, it bothers me that I might get the virus and pass it onto my husband and what then? It is a (more) difficult time for carers. Could you have the prescriptions delivered? That's something I'm looking into this evening.
Hugs,
LoobyLou
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Hi Loobyloo
he does have regular meds delivered, but having recently been diagnosed with a portal vein thrombosis the injection was a new med, when I picked up the first months supply I asked if subsequent supply could be delivered with his regular meds (because OH is in vulnerable at risk group and I am 68 myself) and was told by pharmacist that it would make things very difficult for them (!) it was only when I got emotional and was fighting back tears they agreed that if I phoned in advance they would deliver ....
never easy is it, but definitely worse now ...
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