I have no idea what I should be expecting after my partners debulking surgery if Glioblatoma grade 4 last Monday
Its been a week and I was not prepared for what is now my partner.
High doses of steroids are gradually being reduced to just 4g a day. He is still confused. If you ask him to talk about his childhood or any story from his youth. He is able to use a normal voice. Goes into minute detail. Any conversation involving the heat and now. His voice is quiet. He pauses between words. He can communicate well. But is unlikely to remember the details a hour later.
He does not smile anymore when in the now.past stories make him smile. His personality is different. He cries when he can’t seem to do the things he could a week back
I tell him it’s because he has had major surgery a week ago and he knows this. But we didn’t expect this post surgery. He is confused. Head is mush he says. Simple tasks are impossible. Reading impossible
I keep telling him it’s the medication or it’s just normal and it is early days and it will get better. But I don’t know this
i am scared for him
i am scared for me. I am exhausted after one week. Using soft voice, guarding my words. Trying to not do things for him, praising each milestone. But actually he is totally dependent on me and although I have family support. They are not able to deal with the changes and support the now him
Is the normal that he seems so much worse
