Post surgery

Hi , good to hear the op is done but not so good for either of you at the moment. I've seen a lot of posts talking about similar side effects. High doses of steroids do make people paranoid and even make them psychotic (I know because of my own asthma), so that side of things is likely to stop once he's off the steroids. As to the other things, his sight and difficulty using the phone, those effects are often mentioned too. It's very early days so I wouldn't worry too much yet, although it's easy to understand that his coming home is 'daunting' for you. I'd have a chat with his specialist nurse and speak to the hospital staff now, before you go home, for their advice. He's going to need you much more than usual for a while, at least while he's taking steroids. When you say you 'have support', is that daily carers? If not, ask about that before you leave the hospital, there's nothing they can do when you've left. Please let me know how you get on.

Love and hugs,

Steroids send them crazy especially high doses .Also there will be some swelling after surgery .Bill had two awake crainiotomies and it takes time to get over the surgery .I have also joined the brain tumour charity carers site .There are lots of people on there with lots of experiences with tumours unfortunately and along with this site you will find lots of help and also where to get more support .Its amazing how well people do with brain tumours and the worst part is adjusting to the life after .It takes time and isnt easy .Accept all the help you can get and make sure you get a break now and again lots of love and keep posting xx