I am on my own caring for my step dad who has lung cancer and 3 secondary brain tumours, 1 in the frontal lobe. He has been suffering hallucinations, falling, and trying to wander off at all hours of the day and night. I have had approximately 4-5 hours of sleep all weekend, i lost it yesterday and rang 111 who told me to ring GP first thing this morning and tell them they need to reassess him and refer us for a care package. thankfully I only work part time. I have spent all day on the phone to GP, who only wanted a urine sample and told me to ring the adult social care team myself which I did, to be honest they have been lovely, the third social worker I spoke to admitted that they could not get me any help for tonight as it would take a few days to get anything going, but she said I should ring the GP as they have an emergency care service, I told her that it was them who told me to ring her!!! Anf did not offer any other help, she then rang them for me and low and behold we get an appointment at 5.30 this afternoon, after arranging a lift to the surgery, as I don't drive, we wait for an hour to be seen, to then be told there is nothing they can do to help my step dad sleep and therefore I get some sleep, all they are doing is writing a letter to the local hospice. My step sister has spent all day ringing the local McMillan support worker and they have not returned any calls. So I have another fun night ahead of me.... if this continues for much longer I will be a wreck. Sorry for waffling I just needed to vent.
Hi hayley
You are not wrong there, it's just one thing after another, I don't think I've ever done so much washing either, unfortunately we have had a few bed wetting issues on top of everything else, some pads arrived from Amazon today so hopefully that will cut it down, although they are washable they are not as big as sheets act, and I don't own a tumble dryer so everything is hanging on radiators. It looks like I'm taking in laundry 
:0)
