Dreading holiday

  • 14 replies
  • 42 subscribers
  • 8075 views

Hi everyone

I'm sitting here thinking who can I ring to say how I'm feeling then realised all those I would normally share things with will not understand or get upset with me. So I'm going to tell you instead and hopefully putting on paper will spur me on.

Tomorrow we head south for a few days in a static caravan in Wales. Normally I would be excited to be going away (anywhere) but this time I'm not sure. In November my husband had a spinal compression (due to his stage 4 advanced prostate cancer being in his bones and lymph nodes), leaving him using sticks. He's been great and worked really hard to improve his mobility then a few weeks ago he was doing his 'I'm the man' bit and built most of an Ikea unit, something I could have done. Since then he has got worse again and is now on 2 crutches. His leg is so bad he can't drive. So basically this next week is going to be hard work as we live in Scotland. I will have all the driving to do, the dog to walk more than usual in a strange place and alone. That's the key word I think, 'alone' , because the last 2 breaks we've had that is how I've felt. He's still his cheery self when he's awake but he does sleep a lot these days. Pushing the wheelchair, which he needs when we are out, can be hard too. 

To top it all my brother is having an operation to remove a tumour from his lung on Wednesday so we have to come home via Yorkshire to spend a few days taking my sister in law to visit my brother as she is ill too. Basically I want to find a hole and hide for a wee while but instead I am heading to see my grandchildren (1 and 3) to put a smile back on my face.

Moan over, thank you anyone who has taken time in your busy life to read this. I feel better for just writing this. 

Oh and a stairlift was fitted yesterday which is great for hubby but a constant reminder now that he is terminally ill. 

  • I like the sound of your husband , building the IKEA unit. Dignity is hard fought for by some people and maybe its his way of saying 'l am still me ' My husbands strength is also failing, two summers ago he replaced our entire 10 panelled fence including concrete posts assisted only by the occaisional cup of tea. I encourage our children to consult him about their work issues as they both work in IT like their Dad. They listen to him as always , he is still 'him'. 

    Meanwhile l flounder along in a state of low level anxiety everyday, one day hopeful , the next despairing. We carry on or we give up, thats the binary choice. Bless you for carrying on .

  • FormerMember
    FormerMember

    I feel for you, keep posting to let it all out. Sometimes it's so hard to cope. Nursing a bit of a hangover today after thinking a couple of hours in the pub yesterday would help. It did for a  little while but it's not something I will repeat.. I will try to be stronger. Hope your travels do end up being fun and re energising  even though it will be a lot of work for you 

  • FormerMember
    FormerMember

    Hi HMS 1956, I read the posts generally on a daily basis but very rarely reply. However after reading what you are going through it just struck a chord with me especially saying how alone you feel. I feel exactly the same as my husband is also terminally ill with nsclc and we also are Scottish. I have many friends but to tell them what life is like now is just impossible. A. Because it feels like moaning and looking for sympathy. B. Only when you are in this situation do you understand how it feels and C. My husband does not like to discuss it or for me to discuss with anyone. Very difficult. It will help for you to post here on the hard day's as everyone is very much going through similar experiences. You are not alone. 

    From understanding.

  • FormerMember
    FormerMember

    Hi hms1956,

    Perhaps a little tongue in cheek, but couldn't hubby hold the dog from the chair and you go for a walk together? At the very least the dog may be able to help pull? Also, would one of those extending leads be any good? Hubby could sit outside and let dog wander about and then give you a shout if he plants any doggy 'landmines'?

    More seriously, try to set things up so any downtime you get is spent doing something you want to do rather than need to do. Perhaps a good book and headphones with music or even just a bit of telly?

    It also occurs to me, if hubby's arms are still good, perhaps a pair of leather gloves so he could help propel himself forwards? Just a thought....

    On the subject of grandchildren, my youngest is having our first grandchild in a few months (my son decided to announce the pregnancy on the day my father died - kids, eh?), so I may be asking you for grandparenting tips in the not-too-distant future. For example, am I right in thinking I can fuel them with sugar, wind them up and then just hand them back? Slight smile

    I hope the break turns out better than you think and that your brother's op is a success.

    Dom.

  • Thank you for your reply, I have had a hopeful week. I know exactly what you mean about them getting weaker and my hubby then gets frustrated and upset. Keep being hopeful, take care

    H

  • Update

    Thank you all for the support. I’ve had an internet free week and actually enjoyed the break. I still walked the dog alone most the time but found places where hubby could watch (which he seemed to like) The week wasn’t easy for him and he’s in increasingly bad pain. We are back at oncology tomorrow for a routine visit but he’s gone down hill so much I’m not looking forward to the outcome.

    on a brighter side my brothers tumour was removed on Wednesday and they found nothing else so he won’t need chemo this time. He’s hopefully getting home today. 

    Have a good day folks and remember there are people here who really do know how you feel. At the moment I’m feeling grateful, sad, tired and thoughtful all at the same time which just makes life confusing for me. 

    Off to do the washing and put everything from the hols away while hubby is dosing  (he does a lot) 

    H

  • Hi

    Thanks. We do the dog walk together, at home, with a mobility scooter or the wheelchair but not on beaches or hills (my go to places). 

    H

  • FormerMember
    FormerMember in reply to FormerMember

    These posts have struck such a cord...my husband is very poorly atm and I think time is quite short now. Hes working hard at setting himself goals and challages and i am beyond proud of him. He wants to go on holiday amongst other things that feel completely unrealistic. I am completely torn between wanting to do whatever he wants in his last month's, whilst balancing out what i can manage and what is actually safe! 

    He has played in bands all his life and today he has planned one last gig with the boys. This is such a touch and go thing- whether he'll actually pull it off or not... and last night he wouldn't have been well enough to do it. I want him so much to be able to do this one last time but even at this stage I'm not sure if he'll manage it.

    You are all so right this is hard! Everyone says I am doing amazingly but i dont feel like that. I feel like saying he's my husband,  i love him , there is no choice in this. 

    Lots of love to all you fantastic bunch...I can say this because i am one of you and we really are all amazing xx

  • Hi Ziggy 28

    i really hope he makes it tonight, even if he can’t play just being with the guys and feeling ‘normal’ will give him a boost. You will smile too watching him.

    im so glad we had the holiday now, even though it was hard work for both of us. Good memories to hold onto. Keeps us both positive. 

    Sadly my hubby ended up in hospital on Wednesday morning but I insisted they let him keep his oncology appointment and I’m so glad I did. He had and MRI and an X-ray which resulted in a transfer to Beatson (West of Scotland Cancer hospital) over the past 3 days he has had 5 blast of radiotherapy and xrays as they discovered tumours on his hips now. They were on his back last time. No wonder his mobility was bad. Fingers crossed he is transferred back to our hospital tomorrow as planned then he might get more visitors. 

    Take care and have a great day enjoying each other. 

    H

  • I’d just like to update you all before I leave this group for a final time. I am so very glad and thankful we had the holiday I was dreading as my husband went into hospital on May 8th and sadly didn’t come home. After a long battle he is finally at peace. 

    Thank you for all your supportive comments and I wish you all well in your own caring roles, it’s never easy but very rewarding and an honour to spend time together 

    H