I have been on the above treatment for 5 cycles now and am finding it difficult to find other people who are on it.
I am coping pretty well with minimal side effects, mainly tiredness and a bit wobbly on my feet sometimes.
My consultant says he is quite happy for me to go abroad on holiday as long as I have good insurance.
My tumour has not shrunk so far with the treatment but I'm hoping for some shrinkage after my next scan in October.
If anyone has experience of long term Dostarlimab and its effects, I would l9ve to hear about it.
Thanks K
Hi Km71
I don't have any experience with the drug Dostarlimab, but just wanted to pop on to suggest that you also post this question in the womb cancer group, which I can see you're a member of, as you'll then connect directly with people who are on it.
I don't know if you've got your travel insurance sorted yet but, if not, you could have a look through the 'recommended travel insurance' and 'recommended travel insurance 2023-24' threads that are in the travel insurance group. They are full of recommendations from people who've got insurance.
That's great to read that you're experiencing minimal side effects from Dostarlimab and I do hope you have a lovely holiday wherever you decide to go.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
Hi Km71
Thanks for taking the time to recommend insurancewith. Although I haven't used them myself, I know they frequently get recommended in the travel insurance group.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
