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Sounds fascinating Helen! 

I've been gardening, catching up on all those weeds......plus getting the small raised beds ready for a great taste of peas and runner beans. We don't grow a huge amount, but love them young and really fresh, and organic too of course (though not certified as such!) 

This next week will be busy as we will be at BP four days out of the seven! That's why I will be in need of a rest! 

Good forecast for Sunday, though tomorrow we are forecast showers.....

Hugs xxx

Sounds like you will be so busy Moomy, so glad we made it to Bletchley last year and enjoyed a lovely day out memories to treasure, sadly it's not good news here, hubby's cancer is back and I was shocked today when told by the Oncologist it is stage 4 and he will start palliative chemo next week. I had hoped we would get more time to enjoy his early retirement. He has set himself some goals, to kayak to the neighbouring counties in stages and the big 1 to be still here for when our youngest son gets back from Australia, he will go in July for a year, so hoping he can still be here to see him return. For now 1 day at a time.

Hoping others are having a better day, sending love and hugs to those who need them xx

I was so sorry to read your bad news about hubby's cancer. What a rotten disease it is and how awful that it has returned after all that he has been through. I have so much respect for him and all the others who battle so hard it is very cruel when the evil one returns.

I do so hope that he is able to achieve his goals and retain his quality of life. As you say take one day at a time, make special memories and love one another.

hugs, strength and love to you both xxxx

moomy - wow... that must be so interesting to work on, hope it doesn't leave you too tired!

helen; oo, where abouts in Cambridge is that? I live there (assuming we're talking Cambridge UK of course....) - We enjoyed a trip out last night, just to a nearby pub, again so mild, I was able to go outk just in a skirt and short sleeved top, in the evening, and sit outside, which was so nice... - Was oddly  colder here, today at 11.30 than it was, last night at 11.30 at night!

polarbear7 -- Oh, I@m so saddened to hear that. Hopeing you can all cope as best you can, and get to enjoy those days that you can, in the time ahead. - I've sadly lost two friends here recently, near where I live, both had seemd to have done well with their cancer treatmnet, of various kinds, and then both got that aweful news of entering only paliative treatment as the final option left. I hope you've got the strength for it, emotionally particularly, well, I just can't imagine. Extra-hugs...

 

My news?; may be off to Berlin, in a few days, for a very short trip away; all expenses paid though, funded by the pharma firm who makes my growth hormone, I now have to inject daily,- its some kind of patient conference, so all paid for and organised by them, and didn't seem a good idea to miss the oppertunity of a free trip away, and maybe learning something new about my medication, and meeting other patients with adult onset growth hormone defeciency... - sadly won't get to see much of Berlin whilst there, but I guess we should find some oppertunity to see a little of the city, and hopefully try one of the curry-sausages that everyone i know always mentions in relationship to Berlin...

Other than that I've been improving a lot, the last few months, getting stronger, and I've started dieting and exercise; now  circuit training once a week, and the gym twice a week. I've lost 16 Lb so far, in about 7 weeks, mainly through calorie     restriction, which I'm realy proud of, as i've done it despite still being on the steroids, and still having no thyroid hormone replacement, and very low thyroid numbers, off the bottom of the normal range, when they tested last month. - this hormone treatment stuff  seems to have way too much trial and error in it, for my liking; Still awaiting follow up cardiac appointment, to discover how dammaged my heart is, from medication, and still awaiting to see if I'll need extra medication for the ostioporosis  in my spine and hips/legs, caused by the steroids I'm on; hoping the gym, plus calcium, magnesium  and vitamines D3 and K2, I take, will help too with the bones. - getting sense out of endocrine Drs is just proving so impossible, and their rotten administrative abilities have and our putting things back years in my treatment, already.

But I'm gettin fitter and stronger, despite their best efforts, and feeling so much stronger and full of energy, ever-since I stopped taking the thyroid meds that were just making me so ill. Still no solution for my water-retention; they did eventually try me on a diuretic, which, oddly, made me go to the toilet less, so I had to stop taking that too, as the GP didn't seem willing to monitor my sodium and potassium, and I didn't want to risk ending up in a crisis or another stroke again, from sodium dropping off too low.

Growth hormone is really helping though, I guess I kind of hoped it would be the one to really help sort me out, but I hadn't want to get my hopes too high before I started, and giving myself the injections is so easy, and especially as it seems I'm now entirely unable to feel the little sub-cutainious needles at all.... talking of which, its midnight, time to go inject myself, and take my melatonin, last medication of the day!

hugs for everyone who needs them, hope your all managing as well as  possible.

Mark

Hi all, 

Polarbear, so very sorry to hear your news, yes, one day at a time is the way to think but still keep achievable goals in mind. Thinking of you both...

At Bletchley today, hubs and I ran a practise on the Bombe and got the settings of the day, decoded and then translated the message! Yay! We are up to date with practises, engineering on Tuesday and then the challenge Thursday and Friday. Just hope atmospherics allow the morse to get through, and also that our Bombe machine doesn't have a 'hissy fit' and runs well. 

Mark, well done for losing weight and getting fitter in spite of what they are dosing you with (or not!) 

Christine, good to see you popping in 

Love and hugs to you all xxx

Thank you Mark and Moomy,

We are a bit shell shocked at the moment and can't quite get our heads round this, but hubby will start the palliative chemo hopefully on Friday, so it will become more real then. Feeling a bit lost and overwhelmed at the moment, as I say 1 day at a time.

Moomy, hope the net week is a success and not too stressful for you, and you enjoy putting the old lady (bombe machine) to work again good luck.

Mark, I am in awe of your strength to go through all you have and still come out smiling and with stamina to lose weight, wish i had your determination to stand up and fight  through well done, and hope you have a lovely trip to Berlin.

Christine, Lovely to hear from you and hoping you are well.

Meantime I can be found either in the hot tub or snuggled under a blanket, both feel very comforting in this time of uncertainty  hugs and strength to you all xx

Crept in, found dear Polarbear still tucked up nice and snuggly, made sure faeries popped extra wood on the fire, and were ready to make tea or coffee whenever she wakes......

Popped into the hot tub as my back is still a bit sore from gardening, it certainly does help soothe aches and pains! 

The bombe machine behaved enough today for our last practise, Thursday and Friday are looming up fast! 

Hugs to all xxx

Hi Moomy and Polar bear, who may have hibernated !

Just popped in for some relaxation after a pretty bad week. Oncologist appointment didn't go well, i knew it was coming but hoped for the best. My maintenance on alimta is not holding up after 3 rounds there is progression of nodules and thickening in right lung causing breathlessness.

There is no option of targeted Therapy as no markers and to be honest i am feeling doomed to my fate. My only option now is the matrix trial at Freeman hospital in Newcastle which i signed up for last week but there is a 2 month wait to even get things going. Oncologist is keeping me on maintenance for now then look at other chemo options.

Good thing is i feel pretty well apart from breathlessness and eating well, maybe too well lol. I was so hoping for a long stint on maintenance to give me some time to enjoy my family.

Sorry to bring this here but it's my fave place to talk.

Will be in the corner by the fire keeping warm hoping for a nice snooze. 

Rose

Hi Rose

Sorry to hear the treatment is not helping.

good that you feel OK though, you have to go with the positives.

Fingers crossed for the trial and meantime enjoy life as much as you can and eat well.

Love and hugs and positive vibes coming your way xxxxx

Hi, Rose,

So, so sorry to hear that. But so glad to hear you don't actually sound like your feeling too  unwell, keeping my fingers crossed for you that remains the case as long as possible; I think 'eating too well' sounds like a good idea to me! (I'm still on my calorie restricted diet!)

Fingers crossed for the trial, and that the maintanance  treatment can do more good than harm for you.

An afternoon of trying to organise transport for me, my husband, and my myriad of medications to Berlin, for a two day conference next week paid for by the pharma company Phizer (they make my growth hormone I inject each day). - I've got various letters to say I have to carry my hydrocortisone emergency injection kit, with intramuscular needles, the refridgerated growth hormone pen, with subcutainious needles, then of course all the actual tablets etc!- a two day trip away I think there will be more medication and medication related items in our travel bag than clothes etc! - Now to find out how early we need to be at heathrow,  and work back from the tube to Kings cross, and see if getting a train there from Cambridge is a viable option.... If not I assume there must be buses or coachs to the airport... - travel to heathrow, and the flight, plus travel at the other end, has to be less than 6 hours I think, or the growth hormone Pen won't keep cold for long enough in the travel bag, and I don't like the idea of the pen becoming corrupt and having to be thrown away, when they cost the NHS about £900 per pen! - that would just be wasteful....

Hope everyone is having as good a day as possible, -- hugs for anyone who needs or wants them.