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I am taking my champagne in the morning Helen.

Visiting the watercress railway in Hampshire today and only brought summer footwear and walking trainers. I could look a pretty picture in my summer finery and my walking trainers as it is currently raining quite hard!!! Never mind we will have a wonderful time anyone.

Cheers to all for a happy Sunday xxx

I've brought some orange juice too. As its morning I will have mine as Buck's Fizz.

Enjoy the railway christine. It brings back memories for me of happier years as we used to live near there.

My parents are coming up today for two or three weeks....depending on when baby decides to arrive. 

Oh, and after a very wet day yesterday the sun is shining again today.

Had a lovely day at the railway.

rides on the steam train, loads of people dressed up in world war 2 gear for the occasion and the sun shone- magic

I

I am really struggling to post. 

Evening all, I hope I get this onto the site. I have typed up several missives only for them to not want to post.

I hope everyone is well this horrid evening, so much rain...

Hurrah it works 

Hi Gillian and everyone, 

Been wondering how folks are, I've not been good at keeping up, sorry (holiday!) and neglected this lovely room. Rain? Oh my, yes, but not in Bexhill much, fortunately, so our holiday was good. But it kept the garden well watered, had to cut the lawn quickly the first evening we got back as it was so long, and the weather was just about to drizzle. 

I've been shopping today, bought some tasty biscuits, choc chip shortbread, please help yourselves. 

Hope we all get to see some summer soon, it's humid here but not specially warm (I know, sounds odd!) and just keeps raining so much! 

Hugs to you all xxx

Hi moomy, and everyone!

I've been trying to keep up with reading this thread, even if not having posted to it for ages and ages... - combination of being busy but mainly sadly because of being too ill.

Seems the cancer last year was merely a warm up to the real feeling ill this year, with the endocrine/hormone problems (seeingly entirely unrelated to the cancer).

Well, a few weeks back, on the 26th May, William and I got married.

Sadly I don't really recall the wedding at all. I started feeling ill on the morning, threw up out of the taxi door on the way to the wedding, and have a vague recollection of concentrating extremely hard on not vomitting again, to make it through the vows, which I did.

Even managed to sign the register, before I threw up in front of everyone  all over myself.

One of the guests had a car, and drove me and W home, where I hid in the bed, feeling increasingly ill, shivering, running a temperature and starting into delerium.

So, a few hours after signing the register I was in an ambulence, and then in emergency admissions, two canulars into one arm, three into the other, and a catherter fitted. IV fluids and antibiotics


At first they thought I was going into sepsus as I had a lot of markers for that, but they later decided it was an Addisonian crisis, or adrenal crisis, caused by  my being low on cortisol (for which I already take hydrocortisone replacement). - Had probably picked up  a tiny gastrointestinal infection, and due to the hydrocortisone wiping out my immune system, that ment I threw up, before I could absorb my morning hydrocortisone dose, and therefore was heading into shock and coma.

Got stuck up on a ward full of alcoholics and down-and-outs for two nights, during which time I never slept and couldn't even  get a nurse to help me clean the vomit off my legs.

Eventually got home, and just been confronting everyone at hospital and GPs etc, with all my symptoms and illness, to try make someone do something.- The oedima I first reported over a year ago to oncology has worstened and is now in arms and fingers as well as legs ankles and feet etc. Was actually at endocrinology last week, for my testosterone injection and informed the nurses yet again of the oedima, and even read to them the guidelines on reporting it as a side effect of hydrocortisone, as it can lead to congestive heart failure if left untreated; "oh that sounds horrible", they said, and did nothing.

have had to resort to using GP as a letter writer; he's already had to write to oncology in the past, as they ignored all the side effects I got from chemo last year, now he's having to do the same writing to endocrinology.

Mind, not at all sure what good the letters do; The last one, to oncology to report the oedima to them triggered a CT scan, to eliminate a return of the cancer, but after that was clear, oncology lost interest and canceled my clinic   appointment.

Seems basically I'm reacting badly to the hydrocortisone meds I need to help prevent me going into a coma and dieing. so I spend all day dizzy, paranoid, anxious, with no short term memory and no concentration- I'm starting to miss the simple life of chemotherapy, I felt better back then than I now do.

Hope everyone else is doing a lot better than I am!-

Mark, 

First of all, congratulations on getting to make your vows, but oh dear! commiserations on the rest. 

It sounds dreadful. 

Hope your GP can get things sorted so that they do at least try to help you! 

Hugs xxx

Likewise Mark congratulations on your wedding. Also commiserations,  it is such a shame you have had it rough. I hope you soon get everything balanced again.

Hi Mark

Been wondering where you were, sounds like a Thyroid Storm?  Have you had your bloods properly tested?  TSH (obviously), but also Free T4, Free T3, Reverse T3, then also Ferritin, Folate, B12, Vit D, Thyroid antibodies (TPO and TgAb), check for the MTHFR gene which means you don't convert T4 as well.

I would head over to heathunlocked.com and post what has happened.  There are some very knowledgeable people on there and they are also patients who have researched and researched their condition so you may well get some really good help.

Good luck.