One step at a time

I hope some of you have been able to get out and about this weekend.

Sometimes I just park the car by the ocean and watch the swell roll in. I find it often gives me a feeling of peace. 

What have you been up to this weekend? Feel free to share a photo or video if you'd like.

https://community.macmillan.org.uk/cfs-file/__key/communityserver-discussions-components-files/197/20260703_5F00_091757.mp4

Had replacement lens put in left eye on Friday morning & back for check up Saturday morning. Can just see mist in left eye now. Wish I’d not had it done. Got more work to be done on eye. Got CT Plan Scan to be done on the 13th & MRI too. Radiotherapy to start early August. If it’s the SARB. Yes oceans, rivers are relaxing. Just got the canal by me & some minor ‘rivers’.  

Hi im due my 5th chemo next tuesday then 1 more and im finished thank god. Do you mind me asking how many you have left. We are thinking of going by train to torquay just to and celebrate the end of this difficult 7 months and hopefully the start of the rest of my life. 

I bet scotland is beautiful.

Take care and good luck Amanda xxx

Hi Brummie69 

I am sorry to hear that you can only see mist in your left eye after the lens was replaced. I hope you can get that sorted out soon. 

Been out to lunch with friends in Teddington near Stratford upon Avon today. A lovely part of the world. Nice walk across some fields and then down to the river…

Hi  Milibob, I so admire you for your courage, determination and strength of character. It shows us whatever stage of our journey we are at if we have the right support and guidance we can start to feel human again and be back at one with nature. 
I am nearing the end of my radiotherapy for testicular cancer after my operation (it feels stranger saying on here than it does to someone at work) However I  was determined not to be house bound by the radiotherapy.  I found the treatment was worse than the condition. I have my radiotherapy every Thursday and Friday and sleep Saturday and and just fatigued Sunday, but out of sheer desperation I go to work Monday to Wednesday. They pick me up and drop me off, they have told me to do as little or as much as I can. They have even put one room aside for me that if I just need to chill or doze for 5 mins then that room is there for me.  My aim and reason for going to work is that  I didn’t want to be stuck at home day in day out just watching day time tv as that in itself would drive me mad.  Someone on one of these groups said about listening to the birds and it may sound silly but things like that  have taken on a new meaning for me and made me realise just how beautiful everything really is around us and how we have take most things for granted every day until something like cancer comes along.  Please don’t get me wrong my life is no bed of roses, I suffer extreme fatigue,  struggle to eat normal meals and my healthcare team keep saying your doing well as I hang my head and try not to vomit.  My only goal now is to get through each day one day at a time and not to let the cancer and treatment dictate my life ( which is sometimes harder than done).  Apart from work I live on my own and my family are not aware. Until I feel strong enough to tell them

I can’t tell my parents who are in the late 80’s and my brother who is a nurse but lives at the opposite end of the country always tries to tell me the docs are wrong. 

I apologise if my post has depressed anyone as it wasn’t. 

I’m a piano teacher and went to a professional development session on Sunday.  I find weekends long on my own now so I am pushing myself to get out. Went for a walk with my two waggly tailed best friends as well. One foot after the other…... 

Hello AdyNorwich 

I don't think your post has depressed anyone - well not me anyway .

We are all in this together, regardless of which cancer we have and if we are on a curative pathway or sadly not.

AdyNorwich said:

I so admire you for your courage, determination and strength of character.

It was a "wake up call" almost dying and then receiving my personal cancer diagnosis and whilst some people say they are going to "fight it" - my attitude has more or less been - well I am still here, let's make the best of what I have and hope the team looking after me can keep me going.

Although the treatment for Prostate Cancer (Hormone Therapy) has many side effects that can "ruin your day" - fatigue, brain fog, ED and many more - I have been determined to get on with life.

I applaud your own outlook on life - you are doing just what I do - enjoying the things we just take for granted and getting on with life and that positive attitude I think is half the battle.

Are you aware we have a group on the Community for testicular cancer? If you wish to "meet" others in the same or similar circumstances, here's the link you need:

Testicular cancer forum 

Your comment about your brother being a nurse and saying "the docs are wrong" made me laugh and wonder if he's in the wrong job!!

You are in the right place for support - a cancer journey can sometimes be a lonely journey and does make you think!

Best wishes - Brian.

Hi everyone, yes listening to the birds is wonderful.  Last week my husband bought me two canaries, I can sit outside watching and listening to them for hours.  It is so relaxing.

Lee x

PS Brian did the ozempic work?  I am putting so much weight on thinking of going on some weight loss injections.

Good Morning Lee (Leelaloo) 

Lovely birds - yellow being one of my favourite colours, being bright and cheerful. Do I see two names over their holes in the aviary?

I have prostate Cancer and my treatment is Hormone Therapy - a known side effect is weight gain. In 3 years I added 3.5 stone to my weight. As I went back on Hormone Therapy and the NHS wouldn't sew my lips together so Ozempic was prescribed.

In 9 months I have lost 2 stone, it's coming off slowly - it works, I just find it hard looking at good food and not being able to finish off a meal. I also like Real Ale and it's helped (not that I needed it ) to reduce my beer consumption.

Good luck with it.

Best wishes - Brian.