Awake and up all night

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Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • Good to see you posting again Eddie!

    xxx Kate

  • Great to see you back Eddie, that is some really great info too.. and what a cute little doggy Heart

    i️ will pass on your lovely message to my friend, her grand baby has hypoplastic left heart syndrome, he had his first op just a few days old and this will be his second of 3… hes so strong! We’ve done a few bits of fundraising and collections at work for the charity and to cover my friends travel and accommodation when she’s gone to visit. She’s been understandably very fragile but she’s the strongest person I’ve ever come across. Heart

  • Thanks Chloe, I appreciate you passing on my message, and I'd like to contribute to the little ones fundraising if I may, HLHS, is a marathon treatment, so he should get a fair bit of time before his last operation, and he couldn't be at a better hospital. As for telling your bestie, my concern as Gilly mentioned, was her finding out from a 3rd party, but not surprisingly she knew there was something wrong before I told her everything, that's why she's my best friend 

    Eddie xx 

  • Hi Chloe, That is great you have a Plan of Action all sorted for your treatment and as Gill said once you start and get the first one past, then you will get into the swing of things and be in a routine that is quite comforting!

    I was sorry to read about the little one, it is so difficult when they are too small to explain to them what’s happening. I do believe children and young ones in particular have incredible resilience people don’t give them credit for! I do hope this and the next op are a great success.

    Love Annette x

    Yesterday is History, Tomorrow is a Mystery, Today is a Gift!!!
  • Morning Annette.

    How are you feeling lass?  Hopefully better than you were, as I get worried when friends are poorly xx

    What you said to Chloe about kids having resilience is spot on.  Almost forty years ago, our neighbour's little two year old contracted leukemia and had many visits to hospital for chemo and other treatments.  One day, he was sat on my knee and started pulling out large chunks of his hair... I got alarmed, thinking he could be hurting himself, and urged him to stop.  He giggled and asked me to pull more out, so I did, and it just came away!  Eventually, he lost the lot and my then husband did a sponsored head shave to raise money for the Candlelighters charity, who arranged holidays for children with cancer and their families.  As the shave made the local paper, more folk donated and raised several hundred pounds as a result.  The family enjoyed a few caravan holidays - at the Blue Dolphin!

    I sometimes see the lad in town and he looks well, which I'm so glad about.  Before the shave, my ex had a fine head of hair, but carried on taking it all off, as he loved it!  Unfortunately he died, aged only 58, and I was devastated at the time even though we'd divorced years before.

    It's great to see yourself and Eddie back, so take good care and lots of love xxx

  • Hi Good morning Gill, I’m so glad your story about the boy had a happy ending, with you seeing him.. grown now. That was a great thing to do to raise money, good for him. I’m sorry your ex died so young, it must have been a really difficult time for you.

    I am feeling a lot better thanks for asking. I think I’ve just been overdoing it for too long and it caught up with me. I always tried to pace myself so if I did something one day, I didn’t do anything much the following day. However now with my husband being unwell I have been trying to do the things he always did, like shopping, sorting out the recycling bins, etc so he doesn’t need to do anything much. You would think by now I’d know better but…..

    I was reading your profile and you must be doing everything! Do you have any help? Now didn’t you keep it quiet you had a “Toy Boy” for a partner!! Aren’t you the lucky one! LOL!!

    Love Annette x

    Yesterday is History, Tomorrow is a Mystery, Today is a Gift!!!
  • Hi there Annette!  Aye, I have a toy boy but I'm in better nick than him at the moment, so yes, I do everything.  But no matter, as I try to rest in between all the jobs, which is exactly what you should do - try to pace yourself and don't overdo it.  I make one of my famous lists for things I've to do every day, and cross them off when I've done them.  It works for me and I try not to get ahead of things.

    Now you take it easy and please pass on my good wishes to your hubby, and tell him he's got a gem of a wife!

    Love Gill xxx

  • Hi Gilly, I used to do a list everyday too, to remind me of things I needed to do, I just need to remember to check the list and I'll be sorted, any GOOD advice welcome. So sorry to hear about the loss of your 1st hubby, I nearly lost my 1st partner recently, and the whole family, went through an awful time, best advice ever, listen to your body my friend, the warnings are there, so please listen to them, like we all do, lol.

    love Eddie and Sheila XX

  • Hi there Eddie, hope you're keeping well too.  I'm afraid my advice on keeping up with lists would be rubbish, as I tend to set too much store by them, a route you shouldn't go down

    Thank you for your kind words about my ex hubby.  When we split up, I wouldn't allow him to fall out for the sake of our two girls, and we remained civil.  Unfortunately he had health problems, exacerbated by his dependency on painkillers, and these played a large part in his demise.  It was an awful time, especially for the girls, but they took charge and gave him a great send off.  I'm afraid he was one who ignored warnings given by the body - aren't we all to an extent?

    Anyroad, enjoy your day and give little Poppy a hug from me xxx

  • What a day... waiting for the ambulance to take me to chemo from 7.45am... arrived two hours later... bloods taken at 11... went for lunch and my partner of 2.5 years decided she didn't want to stick by me through all this because I can't do the things we used to do, nights out and foreign holidays... went back up to get chemo at 2.30 only to be told they had LOST my bloods, would have to take me and bring me back for chemo tomorrow Disappointed relieved