Awake and up all night

Yowsers, Uki! I'm no kinder than anyone else here sweetie, but thank you for that

Talking of wobble moments/ meltdowns, I have plenty of those, although they do seem to coincide with the MiL from hell's visits...hmmm. Fortunately, those occasions are rare.

Have you been on the carer's forum, and if so, how did you find it? I'm a member but haven't posted since the early days of our journey as I find it pretty upsetting - there are some distressing stories from poor souls having a much tougher time than myself. Being naturally silly, I prefer the lighter chat offered here.

Anyway Uki, lovely to hear from you and I hope you're getting some quality sleep, especially with storm Dave about to crash in! Batton down the hatches and enjoy the Easter weekend - if your loving wife is up to it, get her a special treat in. Sending you both chocolate coated hugs for Easter xxx

You're right. I think there are some real heroes on this forum. I am very lucky to have the most wonderful wife, who shines happiness and positivity. There are some really difficult times, but I suppose that's the journey we're both on. I wish I could relax a bit more and enjoy the present instead of worrying about the future.

Aw, it will come hon - take your wife's lead and soak up some of her positive vibes. You are indeed lucky to have someone with such a sunny disposition - imagine how much harder it would all be with a misery guts.

I honestly don't talk about anything negative to OH if I can help it, only about what we'll be able to do in the future, like trips out and nice things. Same as yourselves though, our social life is an 'enviable' whirl of appointments, meetings and lifelong care, but that's ok by me - I don't want the alternative.

Well OH is gearing up to watch Leeds Rhinos, his rugby team, on Sky. But the good news is that he'll be going to see them live in a few weeks, all being well, with his elder brother. Now, eighteen months ago I thought that was something he'd never be able to enjoy again, so good things do happen eventually - it's just a shame he can't cheer them on verbally, but as we say in Yorkshire, owt's better than nowt!

Enjoy your evening my friend xxx

From a Yorkshire lad to a Yorkshire girl, that's rite grand.

Crikey, a fellow tyke! We live in West Yorkshire - I'll guess you're South xxx

No. West Yorkshire.

Snap! And, for once, I'm glad to be wrong. You never know, we might have 'shared' the same hospitals but as we live in North Kirklees, just shy of the South Bradford border, ours are DDH, Pinders and Jimmy's - all three of them our second homes

We're almost relatives Uki! I'll have to start calling you our kid I reckon xxx

We live in Hipperholme near Brighouse and Halifax. You can call me our kid for sure.

Will do, our kid

You'll most likely be with Calderdale Trust then. As Brighouse is only 2 or 3 miles from us, I was only saying to OH a couple of hours ago that we should go next Wednesday for some shopping, and then to Blakeley's for fish and chips. We know Hipperholme and Halifax well too.

It's a small world kidder xxx

Too busy for distractions!!!!!  Still sorting out finances, admin, all kinds of everyday problems, trying to leave poor utterly steessed-out Hubby in some kind of state to be able to run a house and his inherited finances - all been mine, and me brains, him brawn....

Takes the mind off a few fears and realities, I suppose. Too busy researching and organising the practicalities and possibilities, too.  But I also want and need to get my head into a relaxed place, come to terms, etc etc.

Or maybe not? 

Many drugs always seem to wake me up, stimulate an already quite frantic, frenzied mind - paradoxical reacting. If it says makes you drowsy... ‍