Awake and up all night

Moderator - Macmillan Community 2 months ago

872 replies
53 subscribers
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Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7.

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

Have trouble sleeping and looking for somewhere to talk
Would like some company and support each other during the night
Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

Gill H 11 days ago in reply to anndanv

Wow! What an amazing fella he is and I reckon they broke the mould when they made him. Unfortunately for everyone, one genuine person gets overshadowed by all the dross - you only have to watch the news to know that.

Anyway, I'll try for some kip, probably put Raven's ghost stories on, and if you can't, get going with the jigsaws!

Night lass xxx

scared78 11 days ago

hi, i'll be awake most of the night, had news yesterday that my dad has stage 4 cancer, so scared, he is 85 so doesnt want treatment.......is it ok to be on here if it's not me personally?

scared78 11 days ago

anyone suggested CBD oils for sleeping?

scared78 11 days ago

no-one awake now??

Gill H 11 days ago in reply to scared78

Hi there and good morning.

Yes, it's definitely ok to be here regardless as I'm my fella's carer so not the sufferer, per se.

Anyway, welcome to the group and can I say how sorry I am to hear about your dad's diagnosis? I imagine that's why you're probably having trouble sleeping so feel free to post here, whatever the time of day or night. You'll probably find other barmpots like me, also busy burning the midnight oil. Bit of a misnomer that, as it's gone half one!

I saw your second post but don't know anything about CBD oil I'm afraid; maybe another poster does and can advise you on it.

If you're up for a bit of a natter, I'm not tired yet.

Gill xx

scared78 11 days ago in reply to Gill H

thanks for replying, it's nice to be able to chat to people that aren't in this situation with me.

Barmpots suit me fine

Also i got confused and thought the title of this group was someones post so i was suggesting CBD oil to them to help them sleep, then realised it's the subject of the group.

How are you dealing with all this? my mind is no longer a part of the head that is defiantly no longer attached to my neck. Feel quite emotionless

scared78 11 days ago

I am not going to be someone who only talks about themselves, i'm here to support others if I can too, but, the news is so fresh i dont know what to do with myself.

My dad is 85 and so has chosen quality of life over treatment. People will say "well, he has had a good innings" but when i speak to him, he says that he still feels 40 in his mind. Therefore, a good innings is not comfort to him, as no 40yr old (even only in mind) is ready to go.

He is my world but the emotional part of my mind has shut down, yet I can't stop thinking about it. Anger is the only thing I feel. I know we all have to die of something, and many people of age die before 85, so i know i am lucky to have had him for this long, BUT ITS NOT ENOUGH.

I'm scared of what the end looks like for him....pain? I'm scared of the unbearable pain that I can't even comprehend how bad it will hurt right now, but a pain that i know is not very far away. and most of all i feel selfish to think those things, I cant imagine what is going on in his mind, or my mums. They have been together for 60 years.

Gill H 11 days ago in reply to scared78

I like the way you put that as it's pretty much how I felt when I got the news of my fella's diagnosis. It's like a kind of detachment - right at the start I felt like it was happening to someone else. Then it hit me that it wasn't and it came at me like a tidal wave that we'd have to start dealing with it, and quick. Have you felt similar, like the awful news didn't really sink in initially?

scared78 11 days ago in reply to Gill H

yeah totally, did you find it difficult to talk to your fella about it in the beginning? Can you both talk openly about it now?

I am 1 of 4 children, im the youngest at 47. Me and my sister were adopted at age 2 + 6, there is an extra level of attachment and love there from me to him. I am the youngest of 4, the others have always been quite serious (over respectful) with my parents. I have always been the one who talks to them like I would anyone else, make them laugh and Joke with them. I want to stay like that for him but im struggling with how to do that right now.

How are you coping? you have support?

Gill H 11 days ago in reply to scared78

I'll make this a quicky, otherwise our posts will keep crossing. I type on a phone, so it's slow and laborious. I've read all the ones you've sent so far, so I'll send this and reply to the one about your family. Ok love?