Awake and up all night

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Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • I love it. The acting can be a bit woody at times, but that adds to the whole show. x

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  • 7 months ago my cancer journey began although I didn’t know it was cancer at that point. 
    After pot and scans, I was diagnosed with kidney cancer. There were many sleepless nights. On the 27th Nov, my kidney and the cancer was removed. I have recovered well and have been very positive. During this time; a lung nodule was discovered and needs monitoring. My next scan is in May. 
    Everyone thinks I’m doing well and that I’m now fine. But I think this is all starting to hit me now and the sleepless nights are becoming worse. Any tips and advise would be welcome. 
    I have great support but still feel exhausted and lonely. 

  • Morning gang Grin Jamie, I giggled at your comment about Downton Abbey! I've never watched it so I'm out on my own, but OH's mother loved it - maybe that's the reason why I didn't join the party...

    Have a good day all xxx

  • Hi Tallulah

    I remember one Macmillan nurse telling me that a lot of cancer patients are suddenly hit, sometime after their treatment ends, with a feeling of "what the hell just happened" and encouraged me to call the helpline if I got that feeling. 

    Maybe a call to the helpline would be helpful for you.

  • Good morning Tallulah.

    So sorry to hear how you're feeling my lovely, but that's great advice from Helen, so maybe consider it. My OH is almost 18 months down the line from surgery and treatment but still has very bad days in the aftermath of these, so you're definitely not alone with your feelings. His bad days are starting to lessen - helped along by the good folk here!

    Don't ever feel lonely sweetheart, as we're all here to support you, any time of the day or night. Sending you big hugs xxx

  • Good morning, Tallulah.

    Firstly welcome to the group and sorry to read you are struggling emotionally and exhausted. You not alone and this group is veey supportive anytime of the day. 

    I am Jamie one of the champions and normally find me in the kidney cancer forum. I have added the link here for you to hopefully join us there too. Kidney cancer forum all my details of my cancer jounery is in my profile. 

    Sometimes its not till everything settles down a little, when it can suddenly hit us. Our minds get so focused on scans, bloods tests, appointments, reading, information, treatments, surgery. Then its wow all thats done...what do I do now or thinking back over the last few weeks or months how did I get through all this. 

    I to had a small lesion on my right lung, but they said they are not concerned about at present as last 2 scans shown now change Some times these things can show up and be for many different reasons. This still don't mean I am not worried or anxious with what might change at the next scan. 

    Those around us often and not intentionally think now the cancer is removed, means its all done and dealt with. This is not the case and for me personally its just the start of me getting my head around what I have actually been through. 

    The helpline number is brilliant to if you feel having chat will be supportive. I used it a few weeks ago and felt better just to have a listening ear from someone not close to me. 

    You are not alone and we are all very supportive of each other in this group and the kidney group too. 

    All the best, 

    Jamie 

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  • Haha I didnt start to watch it till season 3 after hearing so much about it. It was a good...although at times the stuffed dog often sitting very still at the side of chair was off putting then in the next scene they replaced with a real dog haha Smile

    My plans today is helping a friend car shopping. So a little trip to Coventry for me. 

    I also managed to get the sofa sorted and got in up the stairs. So now happily sat writing this on my new sofa. And Elijah loves it too. Will send a pic later to show him relaxing when he comes home from his early morning walk about. 

    And please send 2 thumbs up to the OH and sorry not been around much last few days, just been busy sorting a few things around the house.

    All the best. Xx

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  • I also managed to get the sofa sorted and got in up the stairs

    Great.

  • Hi Jamie Wave no worries about not being around as much hon, life goes on.

    That's excellent news about the sofa and of course, HRH Elijah rightfully using it as his throne! Two feline thumbs up awaiting OH for when he gets up (I told him to stay in bed when I did my rounds) and no doubt they'll be returned.

    Good luck with the car hunting and maybe a bite to eat in Coventry? Oh, and a stuffed dog - hilarious and I've certainly missed out on DA with delights like that!

    Have a great day my friend, with added hugs xxx

  • I never realised that dog was stuffed haha good you’ve got your sofa sorted!