Awake and up all night

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Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • Hi Stew and I'm pleased for you that you've improved regarding sleeping patterns.  Excellent!

    Ah, the trick with listening to your phone is to close your eyes, too, so the glare doesn't keep you awake.  Unfortunately, my tips leave a lot to be desired.

    Hey, I'm a classical music buff too and have been for many years.  I've got loads on vinyl and CD and still listen to them.  My problem is that if I listen during the night, I find the music so uplifting, and it gives me such a high, that I'm buzzing even more!

    I've been to many concerts and recitals with my eldest daughter, a classically trained French Horn player.  She treat me to a Proms visit in 2006 to see Mozart's Requiem.  It was awesome and the musicians played original instruments from his era.

    When my H was having RT at Leeds Cancer Centre, most days a pianist would be playing the grand piano in Bexley Wing.  Really relaxing during the long waits for patient transport.  One day, a guy was playing Maid with the Flaxen Hair.  Now I really love Debussy, so asked if he'd play Golliwog's Cakewalk.  He gave me a dubious look and said, 'I wish!'. Ah well...

    Take care,

    Gill xx 

  • At least all this chat about other subjects has given some of us a welcome distraction!

  • I think so too, LolaBear.  It's a bit more lighthearted and quite nice to take our minds away from worrying much of the time.

    It's also good to hear other posters' interests and such, making chats more personable.

    Gill xx 

  • I actually slept really well last night, as I quite often do in our motorhome. Unfortunately we're not on a trip for pleasure but back up in Liverpool to parent-sit (husband's parents) while his sister is away on holiday, they are in their 90s and Dad is quite frail. This is our first trip away since finishing my chemo and not what I would have chosen but needs must!

    We will be off to France on 12th June though MinibusTokyo tower

    H

  • Well you're being very kind to parent sit, though I imagine the main topic could be the dreadful news that came about last night in the centre.  Fingers crossed all the injured make a speedy recovery.

    In better news, you must be so looking forward to getting away to France!  Superb and I bet you'll have the best time.  France is gorgeous!

    Take care,

    Gill xx 

  • It's my 4th anniversary today diagnosed with Prostate Cancer... but... and a big but ...3 years in Remission.

    When I was diagnosed, someone here in Macmillanland said to 'celebrate any win'.  So I have tried and it works!

    Sorry it's not exactly the middle of the night but I'm in a mobile signal blackspot.

    Steve (SteveCam)

  • A glorious reason to celebrate SteveCam!  Three years in remission makes everything you've been through more than worth it.  So happy for you.

    H and me saw his oncologist this morning and it was a really positive visit.  We're still travelling through the tunnel but chinks of light are beginning to appear.  Yeeha! 

    Enjoy your day to the fullest!

    Gill xx 

  • 3 years in Remission.

    Well done

    H

  • I remember waiting to see the light at the end of the tunnel, but some days it was so foggy (my brain) I couldn't even find the tunnel.

    Hope things continue to get positive for you and your hubby.  Do they think he will ever get some sort of voice back?

    Be strong for each other.

    Steve (SteveCam)

  • Thanks SteveCam and we will stay strong.  We're in this together, no matter what.

    H doesn't seem super keen about a TEP as yet, but may change his mind at some point as the option's always there.  He is keen to conquer his electrolarynx though, and started tentative steps a while back.  Then came RT and his neck got very sore and then a bit numb.  The 'sweet spot' him and his speech therapist were looking for went into hiding, so she said he could leave it till he was more recovered.

    We've got clinic tomorrow so his EL (we call it Elvis) is coming along for the ride.  It's sod's law that lymphoedema also wants to join the party and H's neck and cheeks are puffed up like risen dough right now.

    Nevertheless, he still wants to get Elvis back in the swing so clinic could be rocking in the morning!

    Take care,

    Gill xx