Awake and up all night

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Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • Hi Gill

    What is wrong with these medics being miserable so and sos? It’s bad enough having to see them at all.

    I had the ultrasound on my carotid artery after my stroke, and the lady doing it was lovely. She was able to tell me everything was good straight away-said she’d been doing her job for years and didn’t want me to have to wait for the results.

    I also had to wear the ecg monitor over a weekend, from Friday to Monday. It was about the size of a smallish mobile phone and didn’t bother me at all. Mind you I was able to tuck it into my bra once they put the stickers on me and set it up.  I don’t suppose your hubby will be able to do that! One trip to hospital to put it on and another to get it off and hand it back.  Hope hubby will be ok with both things-they were straightforward for me.

    Sarah xx


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  • Hello. 
    That’s really good news. So pleased for you. x

  • Have a lovely chilled day tomorrow. Enjoy. xx

  • Thanks Sarah Slight smile I thought the same about misery dick too. Our appointment was at 9.30 so it wasn't like he'd been seeing hordes of others all day long.

    Never mind him. OH had an ultrasound on his neck several months ago, and as it's done in real time I asked the sonographer there and then how it looked, and although she'd noticed nothing of concern, it still had to be sent to the referring doctor for the final results. I had to wear a portable ECG myself last year, just for 24 hours, but you're right that it's not a nuisance and if OH doesn't want to borrow a bra he can tuck the gadget in his top pocket. At least I already know where to go for when he needs it, as the hospital is a maze of corridors!

    My sulks have gone and normal service has resumed, much to my long-suffering OH's relief! xxx

  • A sofa day is just what I've had. Bacon butties this morning and my music on all afternoon. Days like that do a wonderful job of recharging the battery. I may even open a bottle of wine this evening just to round off the day. Thank you for all the replies and comments they add warmth to my day.

  • You part of the group now hehe. Wine sounds a perfect end to a brilliant day of good news for you. Music always adds to the mood aswell. 

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  • I’m glad you’ve got over that not nice experience this morning. I’ve had a horrible experience once from an a&e consultant when my gp sent me there and we had a 5 hour wait to be seen.

    He read the letter from the gp and started shouting at me and I was so shocked. I will now think of him as misery dick. He refused to deal with me at all and told me I had no right to be there! As if I’d want to sit in a freezing cold a&e for 5 hours anyway, but the gp said it was imperative that I go..by this time it was 10pm and he nearly reduced me to tears.

    There's no way I’d let myself be in that situation again and not retaliate. I’ve learned to speak up much better for myself, and I’ve changed my gp. I’d challenge them now for being like that, get their name and put in a complaint. Not my fault he was stressed with a full waiting room but they don’t have the right not to treat patients with respect. 

    My OH complained about a consultant during the latest hospital stay who was just so arrogant and dismissive. Seeing him for an appointment next week again so we’ll need to see how that goes. These people need to learn that we are people, not just a number and we are vulnerable when we’re in these situations. Apparently there have been loads of complaints about this gastro consultant, but nothing changes because they’re so short of consultants! 

    I shall be adding him to the list of misery dicks- it’s made me smile! 

    Sarah xx


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  • Evening Sarah. Your comments have made me smile too Joy cat 

    Ah, most medics are fine but the odd one pops up every so often who can transfer their moodiness on - maybe the guy we saw hadn't had his Rice Krispies this morning! Saying that, you two have encountered some right pieces of work and I'm not surprised you've taken action. I bury my natural instincts to kick off as I'm extremely volatile, otherwise I'd be getting constantly escorted out by security! After we left this morning, where I'd been sickly sweet polite, I just remarked to OH what a nark the doc had been. I've omitted to add all the ripe expletives that accompanied said remark! They get me through the day - and night.

    Talking of night, and the third early start to come this week, I'm going to make a concerted effort to get to sleep soon. Last night I came across Boys from the Black Stuff and got hooked till after 1am, which was bonkers as we've got the box set! I never learn.

    Did you get your cleaning done, because I didn't and will have to get stuck in over the weekend. You should make a date with your sofa, like Jamie and rjh, and get some serious relaxation in as by the sounds of things you've got the dreaded appointments looming up too. We need a break Sarah - we must have been wrong 'uns in a previous life! Hugs to you both xxx

  • Yes Gill-got myself going this morning and did the hoovering and some other bits and bobs so felt quite pleased with myself! I am very slow but anything is an achievement. I can only do it with the hand vac attachment thing because I need my stick in the other hand but things looked better! 

    Should really have gone outside today since it was a nice day but we plan to go out for a run in the car somewhere tomorrow and maybe find a new cafe for pit stop. Weather doesn’t look so good though. It will just be nice to get out of the house and not be going to the supermarket or a hospital or gp! See how OH is feeling…some days are ok, but some are not so good at the moment. Still, it’s nice to have the company while this sick note lasts. 

    I need to find something new to watch..I’ve never watched Boys From The Black Stuff so there’s an idea for me. I’m always looking for something new. 

    You get yourself off to sleep if you can, and hope tomorrow goes ok. 

    Sarah xx


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  • I'll try very soon lovey, and thank you.

    Well done you for getting your chores done, as it always makes things feel better to get them out of the way. Aw I hope you can get out for a spin tomorrow, and find a nice café too - fingers crossed your OH will feel up to it, and it's good to have the fellas at home, even when the reason behind it isn't great. Before mine got ill he worked from home, but I liked it and really enjoy his constant company now, even though verbal conversation is none existent! A lot of sign language and mime does the trick.

    Hey, before I hang up my night owl badge tonight, I urge you to watch the Black Stuff - if you enjoy gritty, true to life dramas then you should like it. We've watched it loads and I managed to imitate a passable Scouse accent by doing that. Brookside was always a family favourite too! 

    I'll let you get off now doll and enjoy tomorrow, whether you stay home or get out for a drive. Night hon and hugs xxx