Awake and up all night

Moderator - Macmillan Community 1 month ago

540 replies
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Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7.

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

Have trouble sleeping and looking for somewhere to talk
Would like some company and support each other during the night
Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

Deb11 7 days ago in reply to Sheelagh

Good luck today Sheelagh, we'll be thinking of you.

Hugs xxx

winkers60 7 days ago in reply to Sheelagh

I hope all goes well Sheelagh.Love Jane x

winkers60 7 days ago in reply to Big Stevie

Best wishes for your chemo.Love Jane x

Gill H 7 days ago in reply to Sheelagh

Good luck today Sheelagh. Fingers crossed it goes well for you love.

Gill xxx

Gill H 7 days ago in reply to Big Stevie

Best wishes for today with your third round. Be the champ Stevie!

Thinking of you and sending hugs xxx

Big Stevie 7 days ago in reply to Sheelagh

Good luck Sheelagh xo

Big Stevie 7 days ago in reply to Gill H

Met with a different doctor today, she was quite positive about the prognosis, said when I stop chemo at 12 weeks and get radiotherapy they might not even need to go back to chemo again.

The only thing they can't be totally 100% on is the pet scan fdg uptake around the surgical wound being ALL just wound healing, but they're "as confident as they can be"... I think I'll take that lol

They also agreed that the fact the tumour had likely been there for so long yet hadn't spread anywhere else is a good sign that they CAN get hold of it and quash it altogether.

Gill H 7 days ago in reply to Big Stevie

Oh brilliant Steve and that sounds so positive! I'm absolutely made up for you! I'm pretty sure you'll be relieved with the good news and be able to relax somewhat now. Oh, and hopefully get plenty of R and R in and a good night's kip!

Enjoy the rest of your day and keep cool. Great news! xxx

Big Stevie 6 days ago

These steroids they give you just before chemo definitely don't help you to sleep... anyone ever tried at least taking less of them?

I also need to stop googling when I can't sleep

Gill H 6 days ago in reply to Big Stevie

Morning Steve.

Something alien happened last night - I slept through! I also forgot to charge my phone and awoke to a flat battery. We're both on charge now so I can reply.

Fortunately I've never had steroids, but can imagine the effects they must cause and interfering with your sleep's a right downer. Have you mentioned it to your team for advice? I think you'd get your hands slapped if you don't take the prescribed dose so do ask.

Ah, Dr Google - is that who you've been consulting? If it is, I spent the longest time visiting his surgery and eventually realised he was a quack. He seemed to enjoy scaring me silly and thrilled to the fact he also knocked untold hours off decent slumber. Avoid him, especially during the twilight hours.

Now, how are you feeling today? Hopefully better in yourself and managing to relax somewhat. Any plans coming up for seeing mates, socialising, stuff like that? I told my daughter about the film you went to see and she said she was going to watch Get Her Back. I think it was called that but you might know better. I'm off to Google it (wait, what after all I've just said?!). It is handy for some things, she says sheepishly...

Have a good day and take care Steve xx