Awake and up all night

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Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • Good morning/night time! I am awake, unable to get back to sleep, in a bit of a bad place, mind racing, had diagnosis of endometrial cancer on 23-12, had CT and MRI and got appt to see consultant on friday 16th, but cannot see a way forward out of this, thinking the worst, just want it all to go away, not coping well at all. 

  • Sorry to hear you're struggling with accepting your diagnosis & finding a way forward.  Not sure if taking just one day at a time might help you?  Try writing down your questions you may have for when you see your consultant, including your inability to sleep - they may have some solution that would work for you...all the best for 26th

  • Good morning sorry you can't sleep either...how long have you suffered sleepless nights?

  • you are right about taking one day at a time, thinking ahead is not helping at all, currently sitting with cuppa talking to cat, this is helping a bit, I try to tell myself that once there is a plan in place, I may be able to cope a bit better

  • Hi NickyCros,Sorry you are finding it hard to cope.The early days of a diagnosis are the worst as your mind is all over the place.It becomes much easier mentally once you know what treatment you will be getting.You have something to focus on then.I’m sure most of us felt like this at the start.A cancer diagnosis is a lot to process.Taking it a step at a time will help.Write down any questions you have for your consultant appt.I took my sister in with me and she asked questions too.It’s helpful to have an extra pair of ears.It’s easy to get out of the appt and think why didn’t I ask about that or forget what was said.Being slightly prepared does help.I had a small notebook to jot down the surgeon’s answers.Best wishes for the 16th.Love Jane x

  • Thanks Jane, that's really helpful, I am just spending a lot of time crying and feeling quite overwhelmed, it's a very very tricky time as you are absolutely right, not knowing is the worst. it's a really good idea to write down any questions beforehand, when I was first told about diagnosis, I went into shock and can't remember much about what the consultant actually said. hank you so much for replying and for your kind thoughts xx

  • I hope you had at some rest at least.

    I had a what i thought was good only but awoke at 11pm, then c1am ,then c2 or3am, then awake at 4am.

    Each section was a deep sleep! So, rested until breakfast!

  • Things will get easier for you, in the meantime animals are a great comfort & am sure they understand that you're not well at mo.  I get feedback from my dog & she puts up with me talking to her non stop lol Laughing 

  • It looks like I was copying what you said but I was writing something similar at the same time.I’ve been suffering from sleepless nights for several years due to the amount of stress I’m under.I’m currently without a home so staying in temporary accommodation while a house purchase goes through.I sleep better than I did before the cancer surgery though.Love Jane x

  • Thanks, it looks a dry morning but need to wrap up.

    Also, a resting when until arives arrives later.