Awake and up all night

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Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • Morning all 

    I hope you all had the day you wished for yesterday.

    We had a lovely day with the grandkids and came home stuffed and ready for a rest Rofl

    H

  • Morning Helen Sun with face 

    We had possibly the best day in fifteen long months thanks lass. Finally Grin 

    It's great you've had one too, but up early again! I still had to do all the usual stuff but managed to get a few catnaps in-between, so don't feel as tired this morning. Hoping everyone here enjoyed their Christmas too.

    It's cold here, so cuppa time methinks. Here's a warm hug xxx

  • Christmas day with family is always special x we had a lovely day too xx christmas eve and christmas day with four of the grandkids, another two of them today. Tried to pace myself with the food  

    Hugs and good wishes

    Lesley Bee xxx

  • Good morning 

    I hope everyone had a lovely day yesterday our day was quite quiet but the three grandkids are coming today for a couple of days so we are getting ready for chaos , I can’t wait! 
    Hope everyone has a lovely Boxing Day

    Linda xxx

  • Aw smashing Linda - enjoy the chaos! Hugs xxx

  • Morning Gill and everyone.

    That’s lovely to hear you had a good day yesterday, and it seems everyone else enjoyed their day. I wasn’t posting here so as not to be the bah humbug person in the thread!

    I spent Christmas Day on my own , so it was the worst one I’ve had for a while. My OH became ill on Sunday, and by Tuesday morning was really unwell. They had a stent put in their bile duct recently and were told if they became ill they needed a&e, so ended up there.

    Taken straight away because the nurse could see they were yellow with jaundice and really not well. Got transferred by ambulance over to Doncaster and been there ever since and will be for a while.

    We were due to get the food shopping for doing the Christmas dinner on Tuesday so that didn’t happen, and were having my in laws and stepson round for the meal. Well, my father in law did some shopping(but not for me) and he did the meal at theirs, but never invited me, just my stepson. Not had one phone call or text and nor has OH! I had a yogurt for my breakfast and a ham sandwich for my dinner at night yesterday.

    I can’t drive, am obviously disabled and in a wheelchair but no-one thought I might want to get to the hospital to visit. I am finally getting a lift today-stepson giving me a lift-he already has our car because his is knackered but asking for that lift  has caused a fallout. 

    Things have been very bad for my poor OH- they have a really serious infection caused by the stent blocking and liver and kidneys struggling to cope. Heart racing and temperature off the scale. The doctors say they are “extremely concerned” how serious things were. 

    So I’m stuck here with no-one and had a few tears yesterday! Maybe today will be a bit better as at least I’ll get to visit.

    Sarah xx


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  • Oh Sarah my love, that's absolutely awful news. To say the in-laws were utterly insensitive is an understatement, but I empathise as I've had a nasty dose of that behaviour too! 

    Try to put their poor form to the back of your mind for now, and concentrate on your OH as he'll need your full support while the doctors get him stabilised, hopefully very soon.

    Aw you should have posted yesterday, if only for support and words of comfort. I'd have certainly responded and I'm sure others would have too. It's awful when you're stuck without transport and I know from last Christmas taxi firms charge double. I find it hard to believe you were left high and dry with all the worry, but that's people for you.

    I really hope circumstances will have changed for the better when you visit OH today, so steady yourself and get a good mindset going if possible. Sending you hugs and strength and all best wishes for your poor OH. Lots of love sweetheart and if at all possible, please send an update on any progress xxxxx

  • Oh Sarah

    I am so sorry to hear about your non-Christmas. I can't believe how inconsiderate your in-laws and stepson have been. Being bolshy, gobby me they wouldn't be my in-laws any longer. 

    I hope you can get to the hospital and have a nice visit with your OH, please let us know how you get on. 

    Virtual hug coming your way.

  • Aww, thank you Gill. Didn’t want to be bringing the mood down yesterday when I was feeling so miserable. 

    I would like to think that I’d be sympathetic to someone in this situation but my in laws only think about themselves. I’ve been sitting on my hands trying not to text my father in law to have a go! 

    It’s £40 normally in a taxi each way to the hospital, so on Christmas Day it would have been a fortune! I don’t keep my debit card here with me as I’m never out to go in a shop, so it is with OH at the hospital-I’ll get it today and my stepson might call at the shop for me to pick up a pint of milk on the way home. Another friend has been in touch-her mum in law is in the same hospital with a broken ankle and they are visiting every day so can take me when they go. 

    If the infection improves, they can do a procedure on Monday-tube down the throat to try and clear the blockage because this needs to be done before surgery for getting the gallbladder out. It all will take time though. So long as things get better that’s the main thing. 

    Now today will be fun-I can’t put on my boots myself so I’m going to need my stepson to do that! Life is so hard being disabled and very frustrating. I can’t have a shower on my own, but won’t be asking for help with that! I’m so used to my lovely OH taking care of me I realise now how little I can manage myself.

    Sarah xx


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  • Thanks Helen! They are perfectly pleasant to my face but all are very thoughtless. I can be very gobby too, but out of respect have kept my mouth shut…for now. They are very religious…I am desperate to ask how they can be Christians when they’re treating us like this. 

    Definitely needing hugs today so appreciate that. At least my cat is a comfort and cuddles up with me at night.

    Sarah xx


    Community Champion Badge

    Cervical Cancer Forum

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm