Awake and up all night

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Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • Hi again Tinks, we're home!

    We got off the hook - I was the queen of blagging and H, on my strict orders, broke his pain barrier and scraped through his exercises.  I did feel awful duping the physio, as he's a smashing guy but needs must.  I've warned maestro to get stuck in to his exercises as I won't tell porkies again!

    I loved the way you described the café fiasco - you're really funny and I was chortling away waiting to see the Head.  I reckon H must think I'm going further off my rocker, but this place keeps me sane. Ooer, that's debatable...

    Righto my lovely - chores are calling for me, so I'll get all done and swoop back later.

    Love from moi xxx

  • Thank you Gill, that's made my day!  You make me laugh too ... you bring out the best in me.  Glad I kept you entertained during the boring wait.  

    Glad to hear that H got stuck into his exercises this time.  He will need to keep them up because if the physio hears the same excuses twice he might start raising an eyebrow or two.  It's tough with the fatigue and feeling in a slumber but I always find they make me feel better.

    Take Care lovely and here's hoping for some sleep for all of us tonight x

  • Oh, deffo lass, but I'm just starting to wake up!  Grrr...

    That's exactly what I said - the same set of paltry excuses would be rumbled if I try them on again.  Exercises ahoy from now on!

    Hoping you can get some decent zeds in.  Love Gill xx 

  • Oh no, that's so annoying when that happens.  I'm yawning and feeling sleepy but will the feeling last ...

  • Here's hoping it does, Tinks.

    I'll button it - then you can get some rest, fingers crossed.

    Just let the sleep vibes drift over you and relaxzzzzz

  • I was in bed at my usual time tonight, which is before 7.30pm. I fell asleep and woke at 10.20pm, thinking it was time to get up! So I might be up a while now!Joy

    Sarah xx


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  • Same here Sarah.

    We started watching a film about the Boston Strangler but, still suffering from fatigue, my H couldn't hack it so decided to go up.  Unfortunately, the poor love is also going through epic mucous eruptions so I've been up and down a few times to mop up.  I always do the honours as it's easier for me to deal with his stoma - done it so much I could do it in my sleep.  Hang on, what is that strange word I've just used?

    Hey, your holiday's getting ever closer.  The excitement must be building and it looks like you'll be escaping the showers predicted for here.  Superb stuff!  Do you manage to sleep when you're away, what with the difference in climate?  The last time I was abroad, 1996!! I can't recall any problems drifting off.  Or,

    it could have had something to do with the skinfull I consumed every night...

    xxx

  • Well, I’m still here! I watch a lot of documentaries about serial killers and the like-I’m fascinated by the whole aspect of the mind and the reasons for people becoming killers, Discovery plus is my friend for that! 

    Your poor hubby…you sound like a calm and practical person, and that’s what we need in those who look after us. But I’ve no doubt it’s hard being the carer.

    I was procrastinating today-trying to decide what to put in my case. I had a stroke last year, and my memory is just awful now, so I have all these packing lists I keep adding things to as soon as they come into my head!

    Once when the kids were little I had spreadsheets as I was packing for everybody including my hubby, but arrived at the destination to discover I’d left all my dresses and clothes for the evening at home-flashback to them hanging on the back of the bedroom door! 

    Tomorrow I really must be decisive. I sleep well on holiday, we both do-sometimes aided by wine or vodka, but my diagnosis of diabetes last week to add into the general mix will make me more careful I think…maybe! My OH has just finished being on gabapentin for nearly a year for a herniated disc so gave up drinking and hasn’t missed it, so I think this holiday will be quite sedate!

    I love the warmth but don’t really sit in direct sun, only shade but it still feels good on these old bones. 

    Sarah xx


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  • Yep, still here as well, as I've just done an update on my profile.

    Ooh, I'm into all the true crime stuff too and have loads of books on serial killers and such.  That makes me sound a morbid sod, but like yourself, I find it really interesting when psychologists delve into their minds, trying to fathom what makes them tick.

    Aw, I get you about memory loss after a stroke.  Just over two years ago, my H had a TIA and he suffered memory loss and some dexterity, hence my extra help with his care.  It was hard, being his home nurse, in the beginning but I'm well in the swing now and have learned so much just by reading up and paying close attention to those in the know.  Basically, I'm his carer because I care about him in every way.  I'm lucky to have him.

    Crikey, that must have been a bombshell when you realised you'd left all that gear behind!  Just don't do the same this time and double check your lists.  Ah, lists, the bane of my life.  I've got the unwanted double edged sword of OCD and being a pedant.  I make a list every day and get agitated if I don't complete it!  It's awful but I can't seem to stop.  What we both have stopped, like your OH, is the demon drink - almost a year now, and we don't miss it either.  It's odd as we were the biggest ale carts going!  Fortune saved but we can't spend it on a holiday just yet, so we'll be patient till he's better recovered.  It'll be something really nice to look forward to, just like yourselves are.  Only two days to go now and I'm excited for you!

    I love this place - it's cathartic writing things down and talking to new folk as friends.  Just brilliant xxx

  • Sorry to hear that you have been diagnosed with diabetes Sarah, as if you haven't been through enough.

    Enjoy your break. xx

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