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“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
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I’m popping back Gill-I did fall asleep last night and managed to sleep for about 5 hours. Been busy today and now putting my feet up.
I went and read your profile Gill, and what excellent news for you both! It seems strange that we find it difficult to believe, when we long to hear those words- buts it’s quite a common reaction in my experience. It takes time for it to sink in I think-it did with me and I was shaking-I probably should update my own profile!
I think I’m all organised now, and need to remember that if I’ve forgotten anything I’m not going to a place where they don’t have any shops!
Sarah xx
Thank you Daisy-it can be added to a long list of post cancer stuff but it will be fine I’m sure, and the break will definitely do me good!
Sarah xx
Aw thank you Sarah. I thought it was just Debs and me who weren't fully believing what we'd been told, but from what you've said it sounds fairly common. Maybe after all the bad news you can't believe the good? I'll get my silly head round it eventually.
Well done with getting organised and a calming rest will do you the power of good. If we don't speak before Friday, I'm wishing you the most fabulous holiday! Try not to forget things, then you can spend your brass on goodies you really want!
Gill xx
Hey Gill, it took time for me to accept-I think I was bracing myself for bad news and when it wasn’t, it took time to come to terms with that, so you’ll get there as recovery goes on. It’s just wonderful news so I’m really pleased for you both.
I have been awake since 2am and up since 5- might need a nana nap later!
Sarah xx
Hiya Sarah, snap ! Good job I’m a morning person
Hubby has got his final MRI scan today, hopefully all clear as the PET scan showed nowt, belt and braces said the oncologist giving him a 95% prognosis that they’d caught it all. My stupid mind goes … yeah but what about the 5% ?
Just madness, but there you go.
Hopefuly a good result comes back and then we can start to breathe again lol.
Hugs to all from west Wales xxx
Oh, all the very best for the scan today-try to focus on the fact that the pet showed nothing and the prognosis is so good, and don’t let that 5% figure get in your head if you can.
I understand the fear-been through it myself more times that I can even remember- but I kept telling myself it would be fine and visualising myself being well again. It’s hard, but I’m hoping that when you get the results back they will confirm all is fine for your hubby and you can move on.
Sarah xx
Thank you so much for your words of wisdom, Sarah, and I'm going to heed them, as I know Debs will too. The pair of us have been wittering about the niggling doubts, but we're attempting to push them away and crack on xx
A snippet of cheer - yesterday we attended a one-off therapy session to help my H with the turbulence he's endured of late. I was a bit dubious, knowing he struggles to open up, but it seems to have worked its magic! Yesterday he was so different - cheerful, acting daft and getting me in fits of giggles, just like he used to. That lady certainly knew her onions and gave him a panacea for his wellbeing. We're in the process of getting on top of the lymphoedema with massage, etc and it's having effect. Another appointment next week for more hands-on treatment will also help and then back to the delayed practice with his electrolarynx. It's starting to come together. Phew!
Thank you again, Sarah. You're a star and very much deserve your holiday. The tingles must be intensifying! Love Gill xx
Gill, I am like your husband, 'find it really hard to open up'. I've had all sorts of different counselling, which does help me.
I love the following quote from your post:
Yesterday he was so different - cheerful, acting daft and getting me in fits of giggles, just like he used to.
So glad things are starting to come together.
Steve (SteveCam)
Gill, I’m so pleased your therapy session was helpful-that’s great! And more good things coming up to focus on.
I had a very downbeat consultant when I first started out-goodness he was a miserable so and so and I still remember some of the things he said to me-they’ve stayed in my head all these years. Then I was referred to the lovely woman who eventually saved my life in Sheffield and it was wonderful to deal with someone who felt I had hope. Even with a 30% chance of survival (which she told my OH and not me at the time!) I would still have gone ahead even if I’d known.
I was in hospital a couple of years ago when my bile duct blocked and I was seriously ill and the gastro doc sat by my bed with my very large hospital file. He called me remarkable after what I’d already been through, and said he admired my attitude. He confirmed as a doctor that he saw better results in treatment and recovery from patients with a positive attitude. That also stays in my mind and is more important than the words of my gloomy consultant!
You and your hubby have been in the eye of a storm..but I hope that you can see a way out if it as time goes on-cancer has a massive impact on the patient and the carer so make sure you both look after yourselves.
Sarah xx
Aw thank you Steve for your words. Yes, at first he looked uncomfortable but then the tears came and the progress has carried on since. He was discharged but help's still there if needed. I'm glad it helped you as the last thing anyone needs is depression, on top of the rest. It must be a bloke thing, bottling it up, but as usual I yapped on. The lady's voice was soporific and soothed us both. I wouldn't get a job within the service - my Vera Duckworthesque voice would scare the punters off!
Have a lovely day and enjoy the cooler weather.
Gill xx
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